The Panel met at the EAN Congress in Amsterdam and the Co-Chairs presented the main points from the Panel Chairs meeting. It was agreed that the Panel would approach all members to suggest a Neurologist in training to join the panel. It was also suggested that a patient association should be approached to join the Panel, and following a very successful joint meeting with the European Federation of Neurological Associations it was agreed to ask them to join.
The Panel has asked all other areas to consider palliative care in their guidelines on specific issues. A Guideline on Multiple Sclerosis is being developed at present, led by Dr Alessandra Solari. The Epilepsy Panel are developing a guideline on Status and would like our involvement.
Relationships with other organisations
European Association for Palliative Care
There is an ongoing relationship and the Co-Chairs met with the EAN President –Elect and David represented the EAPC President, Professor Philip Larkin. The relationship continues to develop and the EAPC now have an on-going Reference Group looking at Neurological palliative care, which included EAN members.
European Federation of Neurological Associations
A very successful seminar was held before the Congress looking at palliative care and further collaboration is planned.
European Association for Neuro-Oncology
A new guideline on glioma had been published and Panel members had been involved in this
It was suggested that the Panel could be involved in local EAN Regional meetings.
There was a need to build on the work on a possible curriculum. It was suggested that a booklet could be produced summarising the Consensus paper.
The HD Panel were interested in looking at end of life issues in HD and this collaboration would be developed in 2017-2018.
by David Oliver, University of Kent
Marianne de Visser, University of Amsterdam