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      Executive Page Dear EAN members, dear friends, It is my pleasure to give you an update on behalf of the EAN Scientific Committee following a busy year since my appointment as chair. It has been a privilege to be so deeply involved in the scientific activities of the EAN and to work closely with an amazing community of people who are so dedicated to the advancement of neurology. One of the strongest threads within that community is the EAN’s group of Scientific Panels, which are often referred to as the organisation’s ‘scientific backbone’. The panels have a hand in everything the EAN does from a scientific point of view, including coordinating clinical research, disseminating good practice, assisting in planning the EAN annual congress, supporting the EAN’s educational efforts, and producing guidelines that assist neurologists in daily practice. All of this work requires a considerable amount of oversight, and this is why each panel is run by its own Management Group, elected by the panel members. Being a part of one of these Management Groups (PDF) is an opportunity to play a direct part in determining the direction of scientific progress within Europe, and I am excited to say that the call for applications to stand for election will be announced in September. All panel members and EAN individual members are eligible to apply to be candidates, with the vote being held among the existing panel members in autumn. I would like to urge every neurologist with a passion for the scientific future of their special area of interest to consider standing for election to the relevant Management Group and to look out for the call for applications later this month. I can tell you from personal experience that fulfilling a role such as this within the structure of the EAN is a fascinating and extremely rewarding experience. The chance to take on such a unique leadership position should not be missed! The most satisfying aspect of being involved in the EAN’s organisational structure is surely seeing all the hard work and planning come to fruition when a small idea evolves into a newly launched project. One such example is the 1st EAN Science School, taking place in Salzburg next March. The idea of the Science School is to offer early career neurologists with an interest in translational research a new avenue for learning about basic pathomechanisms of neurological disorders. Application for this very first edition, on ‘Pathophysiology of disorders of the nervous system’, closed last week and we have been delighted with the level of interest. It was a pleasure to be part of the task force in charge of planning this new project and I look forward to seeing it officially transferred to the hands of the Scientific Committee after a successful event and evaluation in spring. Of our ongoing activities, one of the most significant is the EAN Neuro-covid Registry, which aims to collate epidemiological data on neurological manifestations in patients with COVID-19 infection reported by neurologists in outpatient services, emergency rooms, and hospital departments. We currently have 1,542 patients entered in the database, from 35 centres across 23 countries. So far, 29 patients have been followed for 12 months and 387 have completed the 6-months follow up. This is a decent start, but I would like to strongly encourage EAN members and their institutions to get involved and contribute cases to what will become an invaluable resource for neurologists and clinicians to improve care for Covid-19 patients. Finally, I would like share a word on a forthcoming collaboration between EAN and the Human Brain Project in December, that I think will interest a lot of EAN members. The EAN-EBRAINS joint workshop on ‘The future of medical data sharing in clinical neurosciences’ will be a three-day virtual event that aims to discuss issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. The whole workshop is completely free of charge and registration is open until 25 November, so please check out the details and sign up! I wish you all a healthy and pleasant autumn and I look forward to updating you again. Best wishes Thomas Berger Chair of the EAN Scientific Committee

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      Executive Page Dear EAN members, dear friends, It is my pleasure to give you an update on behalf of the EAN Scientific Committee following a busy year since my appointment as chair. It has been a privilege to be so deeply involved in the scientific activities of the EAN and to work closely with an amazing community of people who are so dedicated to the advancement of neurology. One of the strongest threads within that community is the EAN’s group of Scientific Panels, which are often referred to as the organisation’s ‘scientific backbone’. The panels have a hand in everything the EAN does from a scientific point of view, including coordinating clinical research, disseminating good practice, assisting in planning the EAN annual congress, supporting the EAN’s educational efforts, and producing guidelines that assist neurologists in daily practice. All of this work requires a considerable amount of oversight, and this is why each panel is run by its own Management Group, elected by the panel members. Being a part of one of these Management Groups (PDF) is an opportunity to play a direct part in determining the direction of scientific progress within Europe, and I am excited to say that the call for applications to stand for election will be announced in September. All panel members and EAN individual members are eligible to apply to be candidates, with the vote being held among the existing panel members in autumn. I would like to urge every neurologist with a passion for the scientific future of their special area of interest to consider standing for election to the relevant Management Group and to look out for the call for applications later this month. I can tell you from personal experience that fulfilling a role such as this within the structure of the EAN is a fascinating and extremely rewarding experience. The chance to take on such a unique leadership position should not be missed! The most satisfying aspect of being involved in the EAN’s organisational structure is surely seeing all the hard work and planning come to fruition when a small idea evolves into a newly launched project. One such example is the 1st EAN Science School, taking place in Salzburg next March. The idea of the Science School is to offer early career neurologists with an interest in translational research a new avenue for learning about basic pathomechanisms of neurological disorders. Application for this very first edition, on ‘Pathophysiology of disorders of the nervous system’, closed last week and we have been delighted with the level of interest. It was a pleasure to be part of the task force in charge of planning this new project and I look forward to seeing it officially transferred to the hands of the Scientific Committee after a successful event and evaluation in spring. Of our ongoing activities, one of the most significant is the EAN Neuro-covid Registry, which aims to collate epidemiological data on neurological manifestations in patients with COVID-19 infection reported by neurologists in outpatient services, emergency rooms, and hospital departments. We currently have 1,542 patients entered in the database, from 35 centres across 23 countries. So far, 29 patients have been followed for 12 months and 387 have completed the 6-months follow up. This is a decent start, but I would like to strongly encourage EAN members and their institutions to get involved and contribute cases to what will become an invaluable resource for neurologists and clinicians to improve care for Covid-19 patients. Finally, I would like share a word on a forthcoming collaboration between EAN and the Human Brain Project in December, that I think will interest a lot of EAN members. The EAN-EBRAINS joint workshop on ‘The future of medical data sharing in clinical neurosciences’ will be a three-day virtual event that aims to discuss issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. The whole workshop is completely free of charge and registration is open until 25 November, so please check out the details and sign up! I wish you all a healthy and pleasant autumn and I look forward to updating you again. Best wishes Thomas Berger Chair of the EAN Scientific Committee

      Executive Page: Management Group elections are coming – run for office and help shape our future!

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News in generalOther News

News from World Health Organization

November 5, 2019

 WHO Mental Health Forum

14-15 October 2019

WHO headquarters Geneva – Executive Board Room

WHO’s Integrated Approach to Brain Health

Professor Raad Shakir FRCP

Imperial College, London UK

Member European Affairs committee EAN]

Chair Neurosciences Topic Advisory Group ICD11 WHO

 

The annual WHO meeting of the mental health forum was held on the 14-15 October 2019.  This is the first time that Neurology was invited to attend and present in two separate sessions.  I represented the EAN and presented the case for global Neurosciences in the two sessions.

 

Fig 1. Developing an integrated approach to brain health

 

 

 

 

 

The first presentation included the enormous burden to neurological diseases and the preference of the term Brain Health rather than mental health in all the WHO organisations.  The clear point is that the division of mental health and substance abuse in the WHO is outdated and does not represent the disciplines of Neurology and Neurosurgery appropriately as the most common cause of DALYs and the second commonest cause of death. The discipline of Neurology does not figure in the WHO statistics, as this was not included as the commonest lethal group of conditions affecting humanity as it was misclassified.  It was pointed out that Stroke kills more than AIDS, Malaria and TB put together.

The WHO emphasis was on rehabilitation and there is scant mention of causation, diagnosis, management, or training of Neurologists and Neurosurgeons (FIG2).  This glaring deficiency has to be rectified especially now as 194 countries just approved the WHO/UN declaration on Universal Health Coverage (UHC).

The lack of medical and nursing personal as well as the lack of availability of drugs used for headaches, stroke, epilepsy, Parkinson’s and neuromuscular diseases were outlined. The Neurology Atlas 2017 which was jointly produced by the WHO and WFN was freely available during the meeting and the facts are quite startling.  Specifically in Europe that statistics of the WHO European region when last published failed to show specific data on neurological Morbidity and Mortality

 

 

 

 

Fig2. WHO’s Integrated Approach to Brain Health.

 

 

 

 

 

The second presentation was related to the implications of ICD11 on Neurological practice.

The presentation was limited to 10 minutes and the most new cardinal features of the Nervous System Diseases (NSD) chapter were listed.  It was clearly stated that the agreement of the WHO to move Stroke from the vascular diseases chapter to the NSD chapter was a huge step forward and it has made a marked difference to funding and allocation of resource for neurological services.

Other new features included the expansion of the major headings from 14 to 25, which include circa 5,500 items at all levels.  It is of note that the whole of ICD10 had 15,000 items and now ICD11 has around 55,000 (10%) of which are in the NSD chapter. More over separate chapters include migraine, epilepsy and stroke.  Other new chapters include Prion diseases, which were termed “slow viral infections’ in ICD10. Stroke was in three chapters’ vascular diseases, episodic syndromes with migraine and epilepsy as well as imaging findings for silent infarcts.  All this is now moved over to the NSD chapter.  Emphasis on neuroimmunology, paraneoplastic disorders, neurogenetics, disorders of consciousness, autonomic disorders, disease of CSF pressure and flow as well as the vexing issue of the placement of Dementia.  The agreement reached with colleagues responsible for the mental health chapter was to keep the item dementia where it was in ICD10 under the disorders of mental health and create new entities in the NSD chapter under the title of “Disorders with Neurocognitive impairment as a major feature”. This compromise should satisfy both the aetiological and the practical care components of the huge issue of Dementia (Fig3).

 

 

 

 

Fig3. The causes of Dementia as they appear in the NSD chapter ICD11.

 

 

 

 

The new ICD comes a generation following the old one, which was conceived in the 1980s. It has definitions and will reflect current scientific thinking and practice.  It will also help as an educational tool for young trainees with its definitions and ontology to know how nervous system diseases are placed.

The neurological community is now on the WHO’s map as major player in the shaping of health care across the world in view of its prominence in dealing with the major disorders causing death and disability.  Our place is now secure and we should demand the rightful placement of our specialty in all aspects of health care provision including Universal Health Coverage.

 

 

 

News from World Health Organization was last modified: November 5th, 2019 by Michael
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Dec 1 – Dec 3 all-day
Please find more information here: RTC in Skopje, North Macedonia, 2023 – ean.orgShare this...FacebookTwitterLinkedin
Dec
6
Wed
all-day 17th European Headache Federatio...
17th European Headache Federatio...
Dec 6 – Dec 9 all-day
17th European Headache Federation Congress
EHC 2023 17th European Headache Federation Congress 6-9 December 2023 | Barcelona/Spain Website: www.headache-congress.org/ As the European Headache Congress has always been a wide-ranging stage for scientists to present the latest…
Dec
18
Mon
all-day EAN Regional Teaching Day in Tel...
EAN Regional Teaching Day in Tel...
Dec 18 all-day
The Regional Teaching Day in Tel Aviv, Israel is followed by the Israel Neurological Association Annual Conference on 19-20 December 2023. Please find more information here: Regional Teaching Day Tel…
Jan
31
Wed
all-day Application deadline! EAN Spring...
Application deadline! EAN Spring...
Jan 31 all-day
Please find more information here: Spring School – ean.orgShare this...FacebookTwitterLinkedin
Feb
26
Mon
all-day EPNS Training Course on Acute Ne...
EPNS Training Course on Acute Ne...
Feb 26 – Feb 27 all-day
EPNS Training Course on Acute Neurology
European Paediatric Neurology Society (EPNS) – Training Course on Acute Neurology 26-27 February 2024 EPNS courses are aimed at trainees/residents plus qualified paediatric neurologists who want to refresh their knowledge.…
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