International League Against Epilepsy (ILAE)
Genetic testing in the epilepsies continues to gain importance. However, access differs significantly across healthcare settings. This ILAE survey seeks to establish the state of genetic testing worldwide. We hope that this work will allow us to gain a better understanding of genetic testing practices internationally and enable us to give recommendations tailored to the socio-economic situations across different countries and regions.
Please complete this survey, even if you currently do not have access to genetic testing, as we would like to learn about any barriers to genetic testing worldwide.
The survey has been designed as part of the ILAE task force on clinical genetic testing, ILAE genetics commission.