Due to its importance, the EAN task force on Rare Neurological Diseases recently became a permanent part of the EAN structure with a defined set of rules, tasks and privileges. The Scientific Committee and the Board decided it will be… Continue Reading
The two European Reference Networks (ERNs) for Rare Neurological Diseases and Rare Neuromuscular Diseases (ERN-RND and ERN-EuroNMD) are launching a new joint educational program in collaboration with the European Academy of Neurology.
Clinical practice guidelines are a bridge between scientific evidence and real-world practice. This is the main reason why I decided to advance my background experience (in epidemiology, systematic reviews and meta-analyses), by working on guidelines. Because Neurology is my main… Continue Reading
Production of European standards of diagnosis, treatment and care within the various subfields of neurology, is one of the most important aims of EAN. EAN has therefore set-up a Guideline Production Group (GPG), to provide scientific assistance to active task forces and to oversee the work flow.
28 February 2019 is the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.
The theme for Rare Disease Day 2019 is 'Bridging health and social care' focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day.