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      9th ESF Sleep Medicine School offers creative insights into sleep and brain health

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      May 13, 2025

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      Research Papers of the Month: Tolebrutinib in Nonrelapsing Secondary Progressive Multiple Sclerosis / Tolebrutinib versus Teriflunomide in Relapsing Multiple Sclerosis

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      Research Funding

      Draft Innovative Health Initiative (IHI) Funding Call topics related to the brain

      May 2, 2025

      Advocacy 'Horizon Europe' in large 3D text, surrounded by illustrations of people undertaking various activities

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      May 2, 2025

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      Draft Innovative Health Initiative (IHI) Funding Call topics related to the brain

      May 2, 2025

      Research Funding 'Horizon Europe' in large 3D text, surrounded by illustrations of people undertaking various activities

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      April 4, 2025

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      Video Interview: Mood Alterations in the Prodromal Phase of Sporadic Creutzfeldt-Jakob Disease, with Raphael Wurm

      March 14, 2025

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      March 13, 2025

  • Education
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      May 12, 2025

      Student Corner Photo of a sheet of paper, pencil and crumpled paper on a desk.

      Why Neurology? Read some compelling answers from our EAN 2025 essay contest winners!

      May 12, 2025

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      EAN Spring School 2025 tackles Alzheimer’s, vascular disorders, and general neurology

      May 8, 2025

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      May 2, 2025

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      May 2, 2025

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      March 27, 2025

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      March 6, 2025

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      January 31, 2025

      Student Corner Photo of a sheet of paper, pencil and crumpled paper on a desk.

      Why Neurology? Read some compelling answers from our EAN 2025 essay contest winners!

      May 12, 2025

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      Student Teaser Fellowship reports 2023 – Paris & Basel

      March 12, 2025

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      February 1, 2025

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      August 23, 2024

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      May 12, 2025

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      April 18, 2025

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      March 31, 2025

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      March 12, 2025

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      Clinical Fellowship Reports 2023: Utrecht, Dianalund, & London

      February 20, 2025

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      October 8, 2024

  • Other News
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      Brain Health

      Yaoundé Declaration on the brain economy officially launched

      May 12, 2025

      EBC Composite image containing various photos from European Brain Council events, plus the EBC logo

      EBC launches 2024 annual report

      April 25, 2025

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      April 15, 2025

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      March 29, 2025

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      March 13, 2025

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      December 1, 2023

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      August 28, 2023

      EAN Staff Anja Sander receiving flowers at the end of EAN Congress 2023

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      August 3, 2023

      EBC Composite image containing various photos from European Brain Council events, plus the EBC logo

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      April 25, 2025

      EBC

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      March 29, 2025

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      Join the European Brain Council’s ‘Towards a Rare Brain Disease Ecosystem’ event in Brussels on 20 February!

      January 31, 2025

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      Public Consultation – European Charter for the Responsible Development of Neurotechnologies

      November 25, 2024

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      January 31, 2025

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      January 31, 2025

      News in general

      The Brain Prize 2024: Pioneering work in computational and theoretical neuroscience is awarded the world’s largest brain research prize

      March 5, 2024

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      August 3, 2023

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      November 25, 2024

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      July 25, 2024

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      July 14, 2023

EFNA

News from EFNA – About EURO-ATAXIA

January 3, 2017

Euroataxia is the federation of European ataxia patient groups which works to drive forward research and treatment of the ataxias. The Federation encourages the free flow of information between members on the latest research, foster and improve contacts between practitioners interested in the ataxias, and people with ataxia, promote co-operation on an international level, and raise awareness of ataxia among clinicians, scientists and society. We have existed for about 30 years and currently have 18 member associations from 14 countries.

A number of member associations have recently joined together to provide continuation funding for the natural history study of Friedreichs ataxia which was commenced by the EFACTS  EU funded project. This will allow this vital resource for researchers to continue.  We are also currently very active in the development of a European Reference Network for ataxia, where we are represented by our Dutch Board Member Cathalijne van Doorne.

Ataxia Awareness Day occurs each year on 25th September. This is of major importance to raise the awareness of an unknown condition such as ataxia and each patient group arranges activities in their country on, or around, Ataxia Awareness Day. Links to the member patient groups can be found on the euroataxia website. This year our Annual Conference and AGM will be held alongside a major international ataxia scientific research conference taking place on 27-30 September 2017 in Pisa, Italy, and will be hosted by the Italian Friedreichs ataxia charity, GoFar, also on behalf of Friedreichs Ataxia Research Association USA (FARA), and Ataxia UK.

Patients and carers have an important role in highlighting their particular needs to clinicians and researchers regarding the treatment and research which is undertaken regarding ataxia. We have an understanding of the effects of ataxia on patients, and patient and carer needs. In particular, the members of euroataxia are committed to ensuring that the unique perspective of patients and patient-led organisations is incorporated into the design of research trials and clinical services. Our organisations also have an overarching and valuable view of the state and direction of ataxia research through their funding of scientific research projects world-wide.

You can find out more about who we are and who we represent in here:

Should you wish to know more, please get in touch with:

Sue Millman, Euroataxia Secretary General: smillman@ataxia.org.uk 
Or visit our website at: http://www.euroataxia.org/

 

 

News from EFNA – About EURO-ATAXIA was last modified: November 14th, 2018 by Editor
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