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      December 6, 2023

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      Research Paper of the Month: Apixaban for Stroke Prevention in Subclinical Atrial Fibrillation

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      October 1, 2023

      Executive Page Dear EAN members, dear friends, It is my pleasure to give you an update on behalf of the EAN Scientific Committee following a busy year since my appointment as chair. It has been a privilege to be so deeply involved in the scientific activities of the EAN and to work closely with an amazing community of people who are so dedicated to the advancement of neurology. One of the strongest threads within that community is the EAN’s group of Scientific Panels, which are often referred to as the organisation’s ‘scientific backbone’. The panels have a hand in everything the EAN does from a scientific point of view, including coordinating clinical research, disseminating good practice, assisting in planning the EAN annual congress, supporting the EAN’s educational efforts, and producing guidelines that assist neurologists in daily practice. All of this work requires a considerable amount of oversight, and this is why each panel is run by its own Management Group, elected by the panel members. Being a part of one of these Management Groups (PDF) is an opportunity to play a direct part in determining the direction of scientific progress within Europe, and I am excited to say that the call for applications to stand for election will be announced in September. All panel members and EAN individual members are eligible to apply to be candidates, with the vote being held among the existing panel members in autumn. I would like to urge every neurologist with a passion for the scientific future of their special area of interest to consider standing for election to the relevant Management Group and to look out for the call for applications later this month. I can tell you from personal experience that fulfilling a role such as this within the structure of the EAN is a fascinating and extremely rewarding experience. The chance to take on such a unique leadership position should not be missed! The most satisfying aspect of being involved in the EAN’s organisational structure is surely seeing all the hard work and planning come to fruition when a small idea evolves into a newly launched project. One such example is the 1st EAN Science School, taking place in Salzburg next March. The idea of the Science School is to offer early career neurologists with an interest in translational research a new avenue for learning about basic pathomechanisms of neurological disorders. Application for this very first edition, on ‘Pathophysiology of disorders of the nervous system’, closed last week and we have been delighted with the level of interest. It was a pleasure to be part of the task force in charge of planning this new project and I look forward to seeing it officially transferred to the hands of the Scientific Committee after a successful event and evaluation in spring. Of our ongoing activities, one of the most significant is the EAN Neuro-covid Registry, which aims to collate epidemiological data on neurological manifestations in patients with COVID-19 infection reported by neurologists in outpatient services, emergency rooms, and hospital departments. We currently have 1,542 patients entered in the database, from 35 centres across 23 countries. So far, 29 patients have been followed for 12 months and 387 have completed the 6-months follow up. This is a decent start, but I would like to strongly encourage EAN members and their institutions to get involved and contribute cases to what will become an invaluable resource for neurologists and clinicians to improve care for Covid-19 patients. Finally, I would like share a word on a forthcoming collaboration between EAN and the Human Brain Project in December, that I think will interest a lot of EAN members. The EAN-EBRAINS joint workshop on ‘The future of medical data sharing in clinical neurosciences’ will be a three-day virtual event that aims to discuss issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. The whole workshop is completely free of charge and registration is open until 25 November, so please check out the details and sign up! I wish you all a healthy and pleasant autumn and I look forward to updating you again. Best wishes Thomas Berger Chair of the EAN Scientific Committee

      Executive Page: Management Group elections are coming – run for office and help shape our future!

      September 1, 2023

      EAN News

      Plans in progress for 30th Anniversary of the European Journal of Neurology (1994-2024)

      December 6, 2023

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      Executive Page: European neurology united as ever heading into milestone year

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      Research Paper of the Month: Apixaban for Stroke Prevention in Subclinical Atrial Fibrillation

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      EAN News

      Plans in progress for 30th Anniversary of the European Journal of Neurology (1994-2024)

      December 6, 2023

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      Executive Page: European neurology united as ever heading into milestone year

      December 6, 2023

      Paper of the Month

      Research Paper of the Month: Apixaban for Stroke Prevention in Subclinical Atrial Fibrillation

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      October 1, 2023

      Executive Page Dear EAN members, dear friends, It is my pleasure to give you an update on behalf of the EAN Scientific Committee following a busy year since my appointment as chair. It has been a privilege to be so deeply involved in the scientific activities of the EAN and to work closely with an amazing community of people who are so dedicated to the advancement of neurology. One of the strongest threads within that community is the EAN’s group of Scientific Panels, which are often referred to as the organisation’s ‘scientific backbone’. The panels have a hand in everything the EAN does from a scientific point of view, including coordinating clinical research, disseminating good practice, assisting in planning the EAN annual congress, supporting the EAN’s educational efforts, and producing guidelines that assist neurologists in daily practice. All of this work requires a considerable amount of oversight, and this is why each panel is run by its own Management Group, elected by the panel members. Being a part of one of these Management Groups (PDF) is an opportunity to play a direct part in determining the direction of scientific progress within Europe, and I am excited to say that the call for applications to stand for election will be announced in September. All panel members and EAN individual members are eligible to apply to be candidates, with the vote being held among the existing panel members in autumn. I would like to urge every neurologist with a passion for the scientific future of their special area of interest to consider standing for election to the relevant Management Group and to look out for the call for applications later this month. I can tell you from personal experience that fulfilling a role such as this within the structure of the EAN is a fascinating and extremely rewarding experience. The chance to take on such a unique leadership position should not be missed! The most satisfying aspect of being involved in the EAN’s organisational structure is surely seeing all the hard work and planning come to fruition when a small idea evolves into a newly launched project. One such example is the 1st EAN Science School, taking place in Salzburg next March. The idea of the Science School is to offer early career neurologists with an interest in translational research a new avenue for learning about basic pathomechanisms of neurological disorders. Application for this very first edition, on ‘Pathophysiology of disorders of the nervous system’, closed last week and we have been delighted with the level of interest. It was a pleasure to be part of the task force in charge of planning this new project and I look forward to seeing it officially transferred to the hands of the Scientific Committee after a successful event and evaluation in spring. Of our ongoing activities, one of the most significant is the EAN Neuro-covid Registry, which aims to collate epidemiological data on neurological manifestations in patients with COVID-19 infection reported by neurologists in outpatient services, emergency rooms, and hospital departments. We currently have 1,542 patients entered in the database, from 35 centres across 23 countries. So far, 29 patients have been followed for 12 months and 387 have completed the 6-months follow up. This is a decent start, but I would like to strongly encourage EAN members and their institutions to get involved and contribute cases to what will become an invaluable resource for neurologists and clinicians to improve care for Covid-19 patients. Finally, I would like share a word on a forthcoming collaboration between EAN and the Human Brain Project in December, that I think will interest a lot of EAN members. The EAN-EBRAINS joint workshop on ‘The future of medical data sharing in clinical neurosciences’ will be a three-day virtual event that aims to discuss issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. The whole workshop is completely free of charge and registration is open until 25 November, so please check out the details and sign up! I wish you all a healthy and pleasant autumn and I look forward to updating you again. Best wishes Thomas Berger Chair of the EAN Scientific Committee

      Executive Page: Management Group elections are coming – run for office and help shape our future!

      September 1, 2023

      EAN News

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  • Research
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      Research Highlights of the Month – November 2023

      November 6, 2023

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      Research Paper of the Month: Apixaban for Stroke Prevention in Subclinical Atrial Fibrillation

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ResearchScientific CornerTop Articles

Rare Disease Day: 2nd Teaching Course of the EAN Task Force for Rare Neurologic Diseases

February 28, 2018

It is our great pleasure to announce the 2nd edition of the EAN Task Force for Rare Neurologic Diseases Teaching Course, to be organized in Cluj-Napoca (Romania), from 5-7 September 2018. As last year’s event was a success, the Task Force decided to organize, with Prof. Dafin Muresanu’s help, a  second edition of this event, with a similar layout.

 

In neurology, rare diseases are not so rare. In fact, they are pretty common.  While great progress has been made, it has become increasingly apparent in recent years that people with rare diseases often wait far too long for a diagnosis and treatment. With 5,000 diseases considered rare în the world, many of which are multisystem and/or complex, the diagnostic challenge is daunting.

The rare neurologic diseases (RNDs) are vastly underdiagnosed and effective treatment is often lacking. A global effort is necessary in order to raise awareness and improve knowledge, aiming for earlier diagnosis and specific research programmes to identify disease mechanisms and lead to possible therapies. Cooperative efforts to develop “so-called orphan drugs”, in which scientific societies have been integral, have already started in the US over the last 30 years and, in the European Community, over the last 20 years, but many challenges remain and the EAN is well placed to direct ongoing efforts in Europe.

Neurologists play a key role in recognition of rare diseases and lead on their management. Basic and applied neuroscientists are vital to implement research on RNDs pathogenesis and treatment. The EAN links these disciplines and is responsible for the promotion of knowledge, information, and research on these diseases within the European neurological community.

The EAN Scientific Committee has established a Task Force dedicated to RNDs, with the aim of helping patients with RNDs and their families, through raising awareness to facilitate earlier diagnosis, timely management and coordinating research.

The 2nd EAN Task Force for Rare Neurologic Disease Teaching Course will be an ideal platform to present new data and findings of research concerning the diagnosis and treatment of RNDs. The goal is to increase the awareness of rare diseases among health care professionals and ultimately reduce the time to diagnosis and treatment.

In the first two days of the meeting, a wide range of topics will be discussed, such as: a general approach to the diagnosis and care of rare neurologic diseases and the EAN Role – a Pandora box for neurology, Epicare, Rare Neurological Disorders and rare neuromuscular diseases (NMDs) in the European Reference Network, limb-girdle muscular dystrophy, Rare Neurologic Diseases  and the ways to improve the diagnosis, inherited peripheral neuropathies, metabolic neuropathies, epilepsy, FSH, small vessel disease (SVD), dominant Ataxias and Periodic ataxias, recessive ataxias, spastic paraparesis, Huntington’s chorea and Chorea-Acathocytosis and other rare forms of chorea, dystonias ,  Mineral and Metal accumulation into the brain, Late onset Metabolic leukoencephalopathies, Optic neuropathies:  and CTX. The last day of the meeting will include perspectives for under-diagnosed patients ,  several case discussions and a round table discussion on current therapeutic opportunities for rare neurologic diseases, coordinated by Antonio Federico and all speakers.

For full list of speakers, please see the program on the website .  The interested people may contact Mrs Lucia Cernicka at the EAN HeadOffice (cernicka@ean.org).

We look forward to hosting you in Cluj-Napoca on September 5-7, 2018.

 

Sincerely yours,

Course Coordinators:

Dafin F. Muresanu
Co-Chair EAN Scientific Panel Neurorehabilitation
President European Federation of NeuroRehabilitation Societies (EFNR)
Professor of Neurology, Chairman Department of Neurosciences “Iuliu Hatieganu” University of Medicine and Pharmacy, Cluj-Napoca, Romania
Chairman “RoNeuro” Institute for Neurological Research and Diagnostic
Past-President of the Romanian Society of Neurology
President of the Society for the Study of Neuroprotection and Neuroplasticity (SSNN)

 

Antonio Federico
Full Professor of Neurology, Department of Medicine, Surgery and Neurosciences, Medical School, University of Siena, Siena, Italy
Chairman of the Scientific Committee and Member of the Board of the European Academy of Neurology
Chairman of the EAN Task Force on Rare Neurologic Diseases

 

 

 

 

 

 

 

Rare Disease Day: 2nd Teaching Course of the EAN Task Force for Rare Neurologic Diseases was last modified: May 31st, 2018 by Editor
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Pattern of cognitive deficits in severe COVID-19

December 2, 2020

The BrainChallenge – second edition to take place in Oslo!

May 1, 2019

EAN Virtual Congress: Opening Session of the Virtual Congress

May 23, 2020

The first 12 months of COVID-19: a timeline of immunological insights

April 1, 2021

EAN Campus: Your source for online neurology education!

June 24, 2022

20.12. Gingerbread cookies

December 20, 2018

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