Reference Networks: A second opinion – How EU networks share knowledge to save lives
In Europe, there are around 30 million people living with rare diseases and conditions, but no country alone has the knowledge or capacity to treat them. In 2017, medical practitioners representing 28 centres in 13 EU countries helped a family doctor diagnose and decide on treatment for a child with a rare case of epilepsy.
The EpiCARE network has expertise in treating rare epilepsies. Other networks are devoted to bone disorders, childhood cancers and immunodeficiency.
The EU is launching a Campaign called EUProtects with the aim to show how European countries and people are working together to keep citizens and their families safe.
One of the main achievements are the European Reference Networks on rare diseases. For the campaign they have selected the network on Epilepsy so I invite you to have a look here.
