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  • General interest
    • All COVID-19 Executive Page Country of the Month Paper of the Month EAN News EAN Congress news Interviews
      COVID-19

      Breaking News from EMA

      January 27, 2021

      General interest

      European Academy of Neurology endorses the ALBA declaration on Equity and Inclusion

      January 25, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      COVID-19

      Greater decline of acute stroke admissions compared with acute coronary syndromes during COVID‐19 outbreak in Greece: Cerebro/Cardiovascular implications amidst a second wave surge

      January 5, 2021

      COVID-19

      Breaking News from EMA

      January 27, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      COVID-19

      Greater decline of acute stroke admissions compared with acute coronary syndromes during COVID‐19 outbreak in Greece: Cerebro/Cardiovascular implications amidst a second wave surge

      January 5, 2021

      COVID-19

      Neurology training and research in the COVID‐19 pandemic: A survey of the Resident and Research Fellow Section of the European Academy of Neurology

      January 5, 2021

      Executive Page

      Severe COVID-19-related encephalitis can respond to immunotherapy

      January 5, 2021

      Executive Page

      Executive Page: Happy New Year 2021 from the EAN, the Home of Neurology

      January 4, 2021

      Executive Page

      Executive Page: Recap of 2020 from Secretary-General

      December 1, 2020

      Executive Page

      Executive Page: Dafin Muresanu reelected as Chair of Communication Committee

      November 1, 2020

      Country of the Month

      Country of the Month: Albania

      December 1, 2020

      Country of the Month

      Country of the Month: The Netherlands

      November 1, 2020

      Country of the Month

      Country of the Month: Serbia

      October 1, 2020

      Country of the Month

      Country of the Month: Kazakhstan

      September 1, 2020

      Paper of the Month

      COVID-19 Paper of the month: Neuropathology of patients with COVID-19 in Germany: a post-mortem case series

      January 1, 2021

      Paper of the Month

      Research Paper of the month: Safety and efficacy of prednisone versus placebo in short-term prevention of episodic cluster headache: a multicentre, double-blind, randomised controlled trial

      January 1, 2021

      Paper of the Month

      Covid-19 Papers of the month: ”COVID-19 case fatality and Parkinson’s disease” and ”Multiple sclerosis and COVID-19: how many are at risk?”

      December 1, 2020

      Paper of the Month

      Research Paper of the Month: The burden of neurological diseases in Europe: an analysis for the Global Burden of Disease Study 2017

      December 1, 2020

      EAN News

      European Academy of Neurology endorses the ALBA declaration on Equity and Inclusion

      January 25, 2021

      EAN News

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      EAN News

      Welcome to new year by Editor-in-Chief

      January 1, 2021

      EAN News

      Congress Registration is open

      December 15, 2020

      EAN Congress news

      Congress Registration is open

      December 15, 2020

      EAN Congress news

      Abstract Submission is open

      December 15, 2020

      EAN Congress news

      EAN announces Virtual Congress in 2021

      December 1, 2020

      EAN Congress news

      Investigator Award Winners 2020

      September 14, 2020

      Interviews

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      Interviews

      Interview of the Month with Marco Medina, President of PAFNS

      January 1, 2021

      Interviews

      External Interview – Asian Oceanian Association of Neurology

      November 1, 2020

      Interviews

      Prof. Dafin Muresanu, Chair of the EAN Communication Committee, interviews Prof. Jean-Antoine Girault, President of FENS – Federation of European Neuroscience Societies

      October 1, 2020

  • Academic/Scientific
    • All Scientific committee reports Scientific panels reports Breaking news Neurology updates Eur J Neurol Top 10 Articles Scientific Corner
      COVID-19

      Breaking News from EMA

      January 27, 2021

      Academic/Scientific

      Neurology Update: Pain

      January 27, 2021

      Academic/Scientific

      Neurology Update: Dementia and Cognitive Disorders

      January 27, 2021

      Academic/Scientific

      New Scales & Scores on Sleep-wake disorders

      January 21, 2021

      Scientific committee reports

      Scientific Committee Snapshot: Didier Leys

      April 1, 2020

      Scientific committee reports

      Scientific Committee Snapshot: Rigmor Hojland

      February 26, 2020

      Scientific committee reports

      Scientific Committee Snapshot: Christian Enzinger

      December 1, 2019

      Scientific committee reports

      Scientific Committee Snapshot: Maurizio Leone

      November 1, 2019

      Scientific panels reports

      Coma and DOC Panel Update (May-June): news from the EAN Virtual Congress, personalized pain assessment, NIRS-EEG and machine learning to predict outcomes, prevalence of swallowing disorders and new multimodal predictive algorithms.

      August 11, 2020

      Scientific panels reports

      Statement of the EAN Sleep-Wake-Panel

      June 3, 2020

      Scientific panels reports

      Rare Neurological Diseases in the COVID-19 era: Suggestions for information to patients and caregivers

      May 13, 2020

      Scientific panels reports

      Scentific Panel of the Month: Higher Cortical Functions

      March 2, 2020

      Breaking news

      Breaking News from EMA

      January 27, 2021

      Breaking news

      Greater decline of acute stroke admissions compared with acute coronary syndromes during COVID‐19 outbreak in Greece: Cerebro/Cardiovascular implications amidst a second wave surge

      January 5, 2021

      Breaking news

      Neurology training and research in the COVID‐19 pandemic: A survey of the Resident and Research Fellow Section of the European Academy of Neurology

      January 5, 2021

      Breaking news

      Perceived stress and social support in a large population of people with multiple sclerosis recruited online through COVID 19 pandemic.

      January 5, 2021

      Neurology updates

      Neurology Update: Pain

      January 27, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      January 27, 2021

      Neurology updates

      Neurology Update: Epilepsy

      December 1, 2020

      Neurology updates

      Neurology Update: Epilepsy

      December 1, 2020

      Eur J Neurol

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Eur J Neurol

      EAN consensus statement for management of patients with neurological diseases during the COVID‐19 pandemic

      October 22, 2020

      Eur J Neurol

      BREAKING NEWS: A systematic review of neurological manifestations of SARS‐CoV‐2 infection: the devil is hidden in the details

      June 30, 2020

      Eur J Neurol

      EUROPEAN JOURNAL OF NEUROLOGY: CONTRIBUTIONS FROM SPANISH AUTHORS

      November 4, 2019

      Top 10 Articles

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Top 10 Articles

      EUROPEAN JOURNAL OF NEUROLOGY – TOP 15 ARTICLES 2018

      February 1, 2019

      Top 10 Articles

      Interview with Prof. Patrick Cras – UEMS Section of Neurology (SN)

      February 3, 2018

      Top 10 Articles

      Interview with Mr. Bertrand Daval and Mrs. Nathalie Paulus

      February 3, 2018

      Scientific Corner

      New Scales & Scores on Sleep-wake disorders

      January 21, 2021

      Scientific Corner

      Registrar’s Reading List: Epilepsy Panel

      November 2, 2020

      Scientific Corner

      Registrar’s Reading List: Dementia

      September 22, 2020

      Scientific Corner

      New Registrar’s Reading Lists from the Higher Cortical Functions Scientific Panel

      January 17, 2020

  • Educational
    • All E-Brain Grand Rounds Continuing medical education Resident and Research Fellows Fellowship reports Education corner
      General interest

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      Educational

      Clinical Fellowship 2021 winners

      January 1, 2021

      Educational

      Clinical Fellowship Reports 2019 III

      December 21, 2020

      Educational

      Clinical Fellowship Reports 2019 II

      December 21, 2020

      E-Brain

      EBRA launches 3rd call for clusters

      May 1, 2020

      E-Brain

      News from ebrain

      February 28, 2020

      E-Brain

      ebrain to host the 2019 Neurology Formative Test Questions, from 15 April to 26 May

      April 1, 2019

      E-Brain

      ebrain update: Changes in the ebrain team

      November 1, 2018

      Grand Rounds

      eBrain: virtual case report from Belgium

      October 2, 2017

      Grand Rounds

      Free access to Ebrain for EAN members

      July 1, 2016

      Grand Rounds

      Ebrain granted Royal College of Physicians (UK) CPD/CME accreditation

      July 1, 2016

      Grand Rounds

      ebrain session of the month: neuromuscular junction

      February 1, 2016

      Continuing medical education

      CME online – June 2019 

      June 3, 2019

      Continuing medical education

      Continuing Medical Education

      February 21, 2019

      Continuing medical education

      CME online – October 2018

      October 1, 2018

      Continuing medical education

      CME online – July 2018

      July 24, 2018

      Resident and Research Fellows

      EAN Spring School 2020 – Virtual – Webcasts

      November 20, 2020

      Resident and Research Fellows

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Resident and Research Fellows

      EAN VIRTUAL CONGRESS -Resident and Research Fellow Section General Assembly

      May 26, 2020

      Resident and Research Fellows

      EAN Virtual Congress: Round table Special Session: Unleash your potential with EAN!

      May 24, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019 III

      December 21, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019 II

      December 21, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019

      December 21, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019

      November 2, 2020

      Education corner

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      Education corner

      EAN Spring School – Application Deadline is 31 January 2021

      December 21, 2020

      Education corner

      Research Fellowship winners 2021

      December 1, 2020

      Education corner

      EAN Spring School 2020 – Virtual – Webcasts

      November 20, 2020

  • Miscellanea
    • All Holiday Calendar Grant opportunities News from EAN member societies EBC EFNA News in general Topic of the Month/Week Patients societies reports Surveys Forum Uncategorized
      COVID-19

      Breaking News from EMA

      January 27, 2021

      News from EAN member societies

      New gene therapy to treat rare genetic disorder metachromatic leukodystrophy

      January 18, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      Miscellanea

      Alzheimer Europe launches new guide targeted at health and social care workers and a policy briefing on intercultural care and support

      January 1, 2021

      Holiday Calendar

      EAN Calendar 2020 – Template For Printing

      December 12, 2019

      Holiday Calendar

      24.12. The last day

      December 24, 2018

      Holiday Calendar

      23.12. Last-minute gift idea

      December 23, 2018

      Holiday Calendar

      22.12. A chance to win…

      December 22, 2018

      Grant opportunities

      European Commission: Innovation and novelty in medical devices and in vitro diagnostic devices; towards common concepts of innovation-related risk assessments

      November 1, 2019

      Grant opportunities

      GBS|CIDP Foundation International 2020 Research Grant Opportunity

      October 29, 2019

      Grant opportunities

      The Clinical Fellowship application deadline is approaching

      October 1, 2019

      News from EAN member societies

      New gene therapy to treat rare genetic disorder metachromatic leukodystrophy

      January 18, 2021

      News from EAN member societies

      2020 – BioMed Alliance celebrates 10 years of existence

      January 1, 2021

      News from EAN member societies

      New BioMed Alliance Statement: Open Access Initiatives must not create inequality

      November 1, 2020

      News from EAN member societies

      Health partnership proposal paves the way for greater role for stakeholders

      October 1, 2020

      EBC

      EBC launches new series of disease fact sheets!

      December 1, 2020

      EBC

      Present Your Business or Idea at the Brain Innovation Days Pitch Competition

      October 27, 2020

      EBC

      Save the date for the Brain Innovation Days launch!

      October 1, 2020

      EBC

      The EBC releases its 2019 Annual Report

      September 1, 2020

      EFNA

      Survey on the impact of COVID-19 on neurology service delivery

      November 1, 2020

      EFNA

      EFNA Advocacy Awards 2021 – ‘Action Against Stigma’

      October 1, 2020

      EFNA

      EFNA Annual Report 2019 Published

      August 1, 2020

      EFNA

      Results of EFNA’s Survey on Stigma and Neurological Disorder

      July 22, 2020

      News in general

      Alzheimer Europe launches new guide targeted at health and social care workers and a policy briefing on intercultural care and support

      January 1, 2021

      News in general

      Joint strategy sets direction for EMA and EU medicines regulatory agencies to 2025

      January 1, 2021

      News in general

      Societal Impact of Pain Stakeholder Forum

      December 1, 2020

      News in general

      EAN participation in EMA and COVID-19

      December 1, 2020

      Topic of the Month/Week

      Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research

      March 13, 2018

      Topic of the Month/Week

      Dystonia Europe celebrates 25 years

      March 13, 2018

      Patients societies reports

      News from Alzheimer Europe

      March 2, 2020

      Patients societies reports

      News from the WHO

      January 9, 2020

      Patients societies reports

      News from EFIC and the European Pain Forum

      January 3, 2020

      Patients societies reports

      News from EFIC and the European Pain Forum

      January 2, 2020

      Surveys

      Driving with an intracranial tumor

      July 13, 2020

      Surveys

      SURVEY: Driving with an intracranial tumor

      June 25, 2020

      Surveys

      EAN SURVEY: Neurological Symptoms in COVID-19 Patients

      April 10, 2020

      Surveys

      EMA communication: ICH Good Clinical Practice Guidelines (ICH E6) – Open Comment Opportunity – Deadline: 1 November 2019

      October 7, 2019

      Forum

      Call for Applications: e-Learning Platform Editor-in-Chief

      August 4, 2020

      Forum

      Neurological News from Denmark VI – the land of the 2nd EAN congress 2016: Pain Research in Denmark from a neurological perspective

      April 1, 2016

      Forum

      Neurological News from Denmark V – the land of the 2nd EAN congress 2016: Clinical Dementia Research in Denmark

      March 1, 2016

      Forum

      Updated recommendations to minimise the risk of the rare brain infection PML with Tysabri – Comment to EMA recommendation

      March 1, 2016

      Uncategorized

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      Uncategorized

      Effect of pre-exposure use of hydroxychloroquine on COVID-19 mortality: a population-based cohort study in patients with rheumatoid arthritis or systemic lupus erythematosus using the OpenSAFELY platform

      December 2, 2020

      Uncategorized

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (New Zealand)

      November 24, 2020

      Uncategorized

      Report from the annual Pain Forum meeting

      November 2, 2020

  • EAN
  • Congress 2020
  • Congress 2021
  • EAN pages
  • Eur J Neurol
  • Virtual Congress

eanpages

  • General interest
    • All COVID-19 Executive Page Country of the Month Paper of the Month EAN News EAN Congress news Interviews
      COVID-19

      Breaking News from EMA

      January 27, 2021

      General interest

      European Academy of Neurology endorses the ALBA declaration on Equity and Inclusion

      January 25, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      COVID-19

      Greater decline of acute stroke admissions compared with acute coronary syndromes during COVID‐19 outbreak in Greece: Cerebro/Cardiovascular implications amidst a second wave surge

      January 5, 2021

      COVID-19

      Breaking News from EMA

      January 27, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      COVID-19

      Greater decline of acute stroke admissions compared with acute coronary syndromes during COVID‐19 outbreak in Greece: Cerebro/Cardiovascular implications amidst a second wave surge

      January 5, 2021

      COVID-19

      Neurology training and research in the COVID‐19 pandemic: A survey of the Resident and Research Fellow Section of the European Academy of Neurology

      January 5, 2021

      Executive Page

      Severe COVID-19-related encephalitis can respond to immunotherapy

      January 5, 2021

      Executive Page

      Executive Page: Happy New Year 2021 from the EAN, the Home of Neurology

      January 4, 2021

      Executive Page

      Executive Page: Recap of 2020 from Secretary-General

      December 1, 2020

      Executive Page

      Executive Page: Dafin Muresanu reelected as Chair of Communication Committee

      November 1, 2020

      Country of the Month

      Country of the Month: Albania

      December 1, 2020

      Country of the Month

      Country of the Month: The Netherlands

      November 1, 2020

      Country of the Month

      Country of the Month: Serbia

      October 1, 2020

      Country of the Month

      Country of the Month: Kazakhstan

      September 1, 2020

      Paper of the Month

      COVID-19 Paper of the month: Neuropathology of patients with COVID-19 in Germany: a post-mortem case series

      January 1, 2021

      Paper of the Month

      Research Paper of the month: Safety and efficacy of prednisone versus placebo in short-term prevention of episodic cluster headache: a multicentre, double-blind, randomised controlled trial

      January 1, 2021

      Paper of the Month

      Covid-19 Papers of the month: ”COVID-19 case fatality and Parkinson’s disease” and ”Multiple sclerosis and COVID-19: how many are at risk?”

      December 1, 2020

      Paper of the Month

      Research Paper of the Month: The burden of neurological diseases in Europe: an analysis for the Global Burden of Disease Study 2017

      December 1, 2020

      EAN News

      European Academy of Neurology endorses the ALBA declaration on Equity and Inclusion

      January 25, 2021

      EAN News

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      EAN News

      Welcome to new year by Editor-in-Chief

      January 1, 2021

      EAN News

      Congress Registration is open

      December 15, 2020

      EAN Congress news

      Congress Registration is open

      December 15, 2020

      EAN Congress news

      Abstract Submission is open

      December 15, 2020

      EAN Congress news

      EAN announces Virtual Congress in 2021

      December 1, 2020

      EAN Congress news

      Investigator Award Winners 2020

      September 14, 2020

      Interviews

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      Interviews

      Interview of the Month with Marco Medina, President of PAFNS

      January 1, 2021

      Interviews

      External Interview – Asian Oceanian Association of Neurology

      November 1, 2020

      Interviews

      Prof. Dafin Muresanu, Chair of the EAN Communication Committee, interviews Prof. Jean-Antoine Girault, President of FENS – Federation of European Neuroscience Societies

      October 1, 2020

  • Academic/Scientific
    • All Scientific committee reports Scientific panels reports Breaking news Neurology updates Eur J Neurol Top 10 Articles Scientific Corner
      COVID-19

      Breaking News from EMA

      January 27, 2021

      Academic/Scientific

      Neurology Update: Pain

      January 27, 2021

      Academic/Scientific

      Neurology Update: Dementia and Cognitive Disorders

      January 27, 2021

      Academic/Scientific

      New Scales & Scores on Sleep-wake disorders

      January 21, 2021

      Scientific committee reports

      Scientific Committee Snapshot: Didier Leys

      April 1, 2020

      Scientific committee reports

      Scientific Committee Snapshot: Rigmor Hojland

      February 26, 2020

      Scientific committee reports

      Scientific Committee Snapshot: Christian Enzinger

      December 1, 2019

      Scientific committee reports

      Scientific Committee Snapshot: Maurizio Leone

      November 1, 2019

      Scientific panels reports

      Coma and DOC Panel Update (May-June): news from the EAN Virtual Congress, personalized pain assessment, NIRS-EEG and machine learning to predict outcomes, prevalence of swallowing disorders and new multimodal predictive algorithms.

      August 11, 2020

      Scientific panels reports

      Statement of the EAN Sleep-Wake-Panel

      June 3, 2020

      Scientific panels reports

      Rare Neurological Diseases in the COVID-19 era: Suggestions for information to patients and caregivers

      May 13, 2020

      Scientific panels reports

      Scentific Panel of the Month: Higher Cortical Functions

      March 2, 2020

      Breaking news

      Breaking News from EMA

      January 27, 2021

      Breaking news

      Greater decline of acute stroke admissions compared with acute coronary syndromes during COVID‐19 outbreak in Greece: Cerebro/Cardiovascular implications amidst a second wave surge

      January 5, 2021

      Breaking news

      Neurology training and research in the COVID‐19 pandemic: A survey of the Resident and Research Fellow Section of the European Academy of Neurology

      January 5, 2021

      Breaking news

      Perceived stress and social support in a large population of people with multiple sclerosis recruited online through COVID 19 pandemic.

      January 5, 2021

      Neurology updates

      Neurology Update: Pain

      January 27, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      January 27, 2021

      Neurology updates

      Neurology Update: Epilepsy

      December 1, 2020

      Neurology updates

      Neurology Update: Epilepsy

      December 1, 2020

      Eur J Neurol

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Eur J Neurol

      EAN consensus statement for management of patients with neurological diseases during the COVID‐19 pandemic

      October 22, 2020

      Eur J Neurol

      BREAKING NEWS: A systematic review of neurological manifestations of SARS‐CoV‐2 infection: the devil is hidden in the details

      June 30, 2020

      Eur J Neurol

      EUROPEAN JOURNAL OF NEUROLOGY: CONTRIBUTIONS FROM SPANISH AUTHORS

      November 4, 2019

      Top 10 Articles

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Top 10 Articles

      EUROPEAN JOURNAL OF NEUROLOGY – TOP 15 ARTICLES 2018

      February 1, 2019

      Top 10 Articles

      Interview with Prof. Patrick Cras – UEMS Section of Neurology (SN)

      February 3, 2018

      Top 10 Articles

      Interview with Mr. Bertrand Daval and Mrs. Nathalie Paulus

      February 3, 2018

      Scientific Corner

      New Scales & Scores on Sleep-wake disorders

      January 21, 2021

      Scientific Corner

      Registrar’s Reading List: Epilepsy Panel

      November 2, 2020

      Scientific Corner

      Registrar’s Reading List: Dementia

      September 22, 2020

      Scientific Corner

      New Registrar’s Reading Lists from the Higher Cortical Functions Scientific Panel

      January 17, 2020

  • Educational
    • All E-Brain Grand Rounds Continuing medical education Resident and Research Fellows Fellowship reports Education corner
      General interest

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      Educational

      Clinical Fellowship 2021 winners

      January 1, 2021

      Educational

      Clinical Fellowship Reports 2019 III

      December 21, 2020

      Educational

      Clinical Fellowship Reports 2019 II

      December 21, 2020

      E-Brain

      EBRA launches 3rd call for clusters

      May 1, 2020

      E-Brain

      News from ebrain

      February 28, 2020

      E-Brain

      ebrain to host the 2019 Neurology Formative Test Questions, from 15 April to 26 May

      April 1, 2019

      E-Brain

      ebrain update: Changes in the ebrain team

      November 1, 2018

      Grand Rounds

      eBrain: virtual case report from Belgium

      October 2, 2017

      Grand Rounds

      Free access to Ebrain for EAN members

      July 1, 2016

      Grand Rounds

      Ebrain granted Royal College of Physicians (UK) CPD/CME accreditation

      July 1, 2016

      Grand Rounds

      ebrain session of the month: neuromuscular junction

      February 1, 2016

      Continuing medical education

      CME online – June 2019 

      June 3, 2019

      Continuing medical education

      Continuing Medical Education

      February 21, 2019

      Continuing medical education

      CME online – October 2018

      October 1, 2018

      Continuing medical education

      CME online – July 2018

      July 24, 2018

      Resident and Research Fellows

      EAN Spring School 2020 – Virtual – Webcasts

      November 20, 2020

      Resident and Research Fellows

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Resident and Research Fellows

      EAN VIRTUAL CONGRESS -Resident and Research Fellow Section General Assembly

      May 26, 2020

      Resident and Research Fellows

      EAN Virtual Congress: Round table Special Session: Unleash your potential with EAN!

      May 24, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019 III

      December 21, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019 II

      December 21, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019

      December 21, 2020

      Fellowship reports

      Clinical Fellowship Reports 2019

      November 2, 2020

      Education corner

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      Education corner

      EAN Spring School – Application Deadline is 31 January 2021

      December 21, 2020

      Education corner

      Research Fellowship winners 2021

      December 1, 2020

      Education corner

      EAN Spring School 2020 – Virtual – Webcasts

      November 20, 2020

  • Miscellanea
    • All Holiday Calendar Grant opportunities News from EAN member societies EBC EFNA News in general Topic of the Month/Week Patients societies reports Surveys Forum Uncategorized
      COVID-19

      Breaking News from EMA

      January 27, 2021

      News from EAN member societies

      New gene therapy to treat rare genetic disorder metachromatic leukodystrophy

      January 18, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      Miscellanea

      Alzheimer Europe launches new guide targeted at health and social care workers and a policy briefing on intercultural care and support

      January 1, 2021

      Holiday Calendar

      EAN Calendar 2020 – Template For Printing

      December 12, 2019

      Holiday Calendar

      24.12. The last day

      December 24, 2018

      Holiday Calendar

      23.12. Last-minute gift idea

      December 23, 2018

      Holiday Calendar

      22.12. A chance to win…

      December 22, 2018

      Grant opportunities

      European Commission: Innovation and novelty in medical devices and in vitro diagnostic devices; towards common concepts of innovation-related risk assessments

      November 1, 2019

      Grant opportunities

      GBS|CIDP Foundation International 2020 Research Grant Opportunity

      October 29, 2019

      Grant opportunities

      The Clinical Fellowship application deadline is approaching

      October 1, 2019

      News from EAN member societies

      New gene therapy to treat rare genetic disorder metachromatic leukodystrophy

      January 18, 2021

      News from EAN member societies

      2020 – BioMed Alliance celebrates 10 years of existence

      January 1, 2021

      News from EAN member societies

      New BioMed Alliance Statement: Open Access Initiatives must not create inequality

      November 1, 2020

      News from EAN member societies

      Health partnership proposal paves the way for greater role for stakeholders

      October 1, 2020

      EBC

      EBC launches new series of disease fact sheets!

      December 1, 2020

      EBC

      Present Your Business or Idea at the Brain Innovation Days Pitch Competition

      October 27, 2020

      EBC

      Save the date for the Brain Innovation Days launch!

      October 1, 2020

      EBC

      The EBC releases its 2019 Annual Report

      September 1, 2020

      EFNA

      Survey on the impact of COVID-19 on neurology service delivery

      November 1, 2020

      EFNA

      EFNA Advocacy Awards 2021 – ‘Action Against Stigma’

      October 1, 2020

      EFNA

      EFNA Annual Report 2019 Published

      August 1, 2020

      EFNA

      Results of EFNA’s Survey on Stigma and Neurological Disorder

      July 22, 2020

      News in general

      Alzheimer Europe launches new guide targeted at health and social care workers and a policy briefing on intercultural care and support

      January 1, 2021

      News in general

      Joint strategy sets direction for EMA and EU medicines regulatory agencies to 2025

      January 1, 2021

      News in general

      Societal Impact of Pain Stakeholder Forum

      December 1, 2020

      News in general

      EAN participation in EMA and COVID-19

      December 1, 2020

      Topic of the Month/Week

      Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research

      March 13, 2018

      Topic of the Month/Week

      Dystonia Europe celebrates 25 years

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Interview with ERN-EURO-NMD Coordinator

June 1, 2019

Interview with Dr. Teresinha Evangelista Coordinator  of  European Reference Network for Rare Disease – Neuromuscular Diseases Network ( ERN-EURO-NMD)

 

Professor Dafin Muresanu, Chair of the EAN Communication Committee

 

 

 

 

Teresinha Evangelista, Coordinator  of  European Reference Network for Rare Disease – Neuromuscular Diseases Network ( ERN-EURO-NMD)

 

 

Dafin Muresanu (DM): EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs). Can you please illustrate to the EAN Pages readers the structure of this reference network?

Teresinha Evangelista (TE): NMDs include a broad group of diseases with overall prevalence of 1/3500-1/2500 that represent a major cause of mortality and morbidity in children and adults. Their rarity and diversity pose specific challenges for healthcare provision and research, and for the development and marketing of therapies.  EURO-NMD is a comprehensive, clinically oriented approach to the thematic grouping of NMD built on many years of networking experience in the NMD field. EURO-NMD unites 61 of Europe’s leading NMD clinical and research centres in 14 Member States and includes several highly active patient organizations. The ERN centres see more than 100,000 NMD patients annually.

The ERN covers five sub-thematic areas: muscle diseases, neuropathies, neuromuscular junction defects, mitochondrial disorders and motor neuron disorders. The ERN was designed around activity groups for clinical aspects, research, education, ethics and the patient advisory board.

Each of the five sub-thematic areas constitutes what we call a specialist group. One expert, supported by co-chairs, leads each of these groups and they address both genetic and acquired diseases in either the paediatric or adult ages. To support these groups there are also four cross cutting groups for genetics, pathology, imaging and neurophysiology. The Activity Groups are responsible for patient care, establishment of best practice guidelines, teaching and education in the respective areas. The Patient Advisory Board is responsible for identifying and acting on patients’ concerns and expectations and it nominates one or more representatives to the different activity groups. The Ethics Committee identifies and examines ethical and social aspects of clinical and research work. The Education Board identifies teaching needs and activities. The Research Board identifies and monitors research activities.

 

The ERN functions in a collegial manner with the Board of the ERN being the primary decision making body, supported by the Executive Committee and the Secretariat. The Board of the ERN has a representative from each one of the 61 Healthcare Providers and all the patients that are part of the Patient Advisory Board have a seat in the Board of the ERN.

DM: How would you define the ERN-EU-NMD’s role towards earlier and better diagnosis as well treatment?

TE: Through the effort that EURO-NMD is doing in education, namely with the production of webinars, the development of the Translational Summer school and the support done to other education activities such as the Myology Summer school; EURO-NMD is clearly willing to help disseminate the most updated information about the diagnostic and treatment of Neuromuscular Diseases. The development and endorsement of Guidelines or standard operating procedures is another of the goals of EURO-NMD to help to improve the diagnostic and treatment. Besides the guidelines that are in preparation in collaboration with the learned societies, namely with the EAN, we have recently developed and published an SOP regarding the technical details need for the muscle biopsies “1st ENMC European meeting: The EURO-NMD pathology working group Recommended Standards for Muscle Pathology Amsterdam, The Netherlands, 7 December 2018. Neuromuscul Disord. 2019 Mar 15.

The submission through the electronic platform developed by the EC (CPMS) of clinical cases for discussion by specialised panels is another mean of achieving this goal. This is particularly important not just for the HCP in the ERN but in particular, for the centres that are not part of the ERN and in countries were the expertise is scarce.

DM: The MoU established with EAN opens up new possible lines of cooperation. What do you and the ERN-EURO-NMD view as goals to reach with this cooperation?

TE: With this collaboration, EURO-NMD aims at increasing its visibility and at disseminating its role as a care structure open to all colleagues from across Europe. We would like, together with the EAN, to raise the profile of rare neuromuscular diseases in the community in general. We believe that this collaboration can avoid duplication of efforts in areas such as education and the development of guidelines and in this way transform clinical care in order to make it more equitable across Europe.

It is only in collaboration with a strong society such as the EAN, that in a near future we can establish the basis for a European Curricula for training in NMD.

DM: The ERN-EU-NMD’s also engages in educational activities and its Summer School addresses issues such as standards of care, outcome measure development, biomarkers. Can you shortly describe this initiative? Can it be an option for cooperation with EAN?

TE: The Translational Summer School was especially developed for researchers and clinicians interested in translational research in collaboration with TREAT-NMD. The course has very hands –on spirit with different workshop and enough time for discussion around the different topics. In session one we approach the basis of the “Translational Lifecycle” with an overview of the translational pathway from bench to bedside that serves as a foundation on which the rest of the course is built. Enough relief is done to the importance of standardizing pre-clinical studies as well as clinical studies; there is an overview on how the regulatory system works and we finish at this point with a mock TACT session. For the benefit of the EAN reader, I would like to briefly explain what TACT is. Established in 2010 the TREAT-NMD Advisory Committee for Therapeutics (TACT) offers world-leading advice on therapy development programmes from industry and academia. We approach the problematic of “Clinical Trials”, from the value of well-developed protocols to the use of meaningful outcome measures and appropriate cohorts. The advantages of patient registries to gather cohorts and to be used for post-marketing surveillance are also discussed and we finished with a strong emphasis on ethical aspects and the role of patients throughout the “Translational Life Cicle”.

 

 

 

Interview with ERN-EURO-NMD Coordinator was last modified: June 13th, 2019 by Editor
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