Other News

EFNA goes global and attends the WHA – World Health Assembly UN Geneva Headquarters from May 20 – 28 2019. Diseases know no borders. Only by truly pooling our resources and going beyond our individual disease areas, our constituencies and countries, do we stand a chance of adequately addressing the challenges of ill-health and inequalities.

EU Buzz: European elections, Horizon Europe and the fight for brain research May has been a busy period in Brussels. Even though the European institutions slowed down due to preparations for the European Parliamentary elections, health societies, research organizations and experts in Brussels are busy planning for the future.

The first speakers have been announced for the 12th FENS Forum of Neuroscience in Glasgow, UK, on 11-15 July 2020. With 56 parallel symposia, the FENS Forum covers all neuroscience, from understanding basic mechanisms of brain function to disease.

Alistair Newton, who has been well-known to many EAN members as a patient advocate, was a founding committee member and long-serving officer of both EFNA and European Brain Council, as well as founder president of Dystonia Europe.

Following the European Parliament elections between 23-26 May, Alzheimer Europe’s #DementiaPledge2019 campaign has drawn to a close. With 230 candidates signed up to the pledge, Alzheimer Europe broke its record of 219 candidates signed up in the 2014 election.

We hear from the European Federation of Neurological Associations – EFNA on the special sessions being organised at the upcoming 5th EAN Congress taking place in Oslo, Norway (June 29 – July2, 2019).

In the continuity of the Value of Treatment research activities, new case studies have been developed on new therapeutic areas. On March 26th, May 23rd and September 24th 2018, EBC in collaboration with the European Academy of Neurology (EAN) and the European Federation of Neurological Associations (EFNA) launched a second round “VoT2” of case studies on Rare Neurological Disorders (RNDs) focusing upon Ataxia, Dystonia and Phenylketonuria

In 2018, STOA completed two Scientific Foresight projects, on assistive technologies for people with disabilities, and on 3D bio-printing for medical and enhancement purposes, while preparing the ground for a new project on alternative options for crop protection in farming practices.

READING RECCOMENDATIONS: NEWS FROM OTHER SOCIETIES

Publication on the roles of the medical profession and the industry on CME The BioMedical Alliance is a unique organisation representing 30 leading European medical societies (including EAN) that together represent more than 400,000 researchers and health professionals.

Prof. Gunther Deuschl’s, EAN Past-President, outstanding contribution to the movement disorders field was awarded during the 2019 AAN Congress in Philadelphia (PA), on May 6.

The ataxia diagnostic flowchart has been developed by members of the European Reference Network for Rare Neurological Diseases (ERN-RND) in order to help guide diagnosis.

On 27 March, the European Parliament and the Council reached an agreement on the EU's future framework programme for research and innovation, the Horizon Europe.

The Brain, Mind and Pain (BMP) initiative has today launched its Book of Evidence for the 2019-2024 European Parliament term.

The publication “SumEMos: Análisis y propuestas para contribuir a normalizar la vida con EM” integrates all voices from the Multiple Sclerosis community in Spain. The document was released in the last weeks in conclusion of last year’s “SumEMos para normalizar la vida con EM” conference on 4 October.