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      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Cape Verde)

      March 3, 2021

      General interest

      Fellow of EAN awarded 2021 Brain Prize

      March 3, 2021

      General interest

      Brain Talks: Professor Günther Deuschl addresses burden of neurological diseases in Europe

      March 3, 2021

      COVID-19

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Cape Verde)

      March 3, 2021

      COVID-19

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      COVID-19

      COVID-19 continuous-EEG case series: A Descriptive Study

      March 3, 2021

      COVID-19

      Acute ischemic stroke and COVID-19: An analysis of 27 676 Patients

      March 3, 2021

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      Severe COVID-19-related encephalitis can respond to immunotherapy

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      Country of the Month: Lithuania

      March 1, 2021

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      March 1, 2021

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      Research Paper of the month: Safety and Efficacy of Omaveloxolone in Friedreich Ataxia (MOXIe Study)

      March 1, 2021

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      COVID-19 Paper of the month: Safety and Efficacy of the BNT162b2 mRNA COVID-19 Vaccine

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      Research Paper of the month: Trial of dexamethasone for chronic subdural hematoma

      February 1, 2021

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      First Virtual EAN Regional Teaching Course in Moscow, Russia

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      March 1, 2021

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      COVID-19 around the World: Clinician interviews on experience and impact of the virus (South Africa)

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      Brain Talks: Professor Günther Deuschl addresses burden of neurological diseases in Europe

      March 3, 2021

      COVID-19

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      COVID-19

      COVID-19 continuous-EEG case series: A Descriptive Study

      March 3, 2021

      COVID-19

      Acute ischemic stroke and COVID-19: An analysis of 27 676 Patients

      March 3, 2021

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      Scientific Committee Snapshot: Didier Leys

      April 1, 2020

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      August 11, 2020

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      June 3, 2020

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      Rare Neurological Diseases in the COVID-19 era: Suggestions for information to patients and caregivers

      May 13, 2020

      Scientific panels reports

      Scentific Panel of the Month: Higher Cortical Functions

      March 2, 2020

      Breaking news

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      Breaking news

      COVID-19 continuous-EEG case series: A Descriptive Study

      March 3, 2021

      Breaking news

      Acute ischemic stroke and COVID-19: An analysis of 27 676 Patients

      March 3, 2021

      Breaking news

      Inflammatory cytokine patterns associated with neurological diseases in COVID-19

      March 3, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      February 18, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      February 18, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      February 18, 2021

      Neurology updates

      Neurology Update: Dementia and cognitive disorders

      February 18, 2021

      Eur J Neurol

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Eur J Neurol

      EAN consensus statement for management of patients with neurological diseases during the COVID‐19 pandemic

      October 22, 2020

      Eur J Neurol

      BREAKING NEWS: A systematic review of neurological manifestations of SARS‐CoV‐2 infection: the devil is hidden in the details

      June 30, 2020

      Eur J Neurol

      EUROPEAN JOURNAL OF NEUROLOGY: CONTRIBUTIONS FROM SPANISH AUTHORS

      November 4, 2019

      Top 10 Articles

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Top 10 Articles

      EUROPEAN JOURNAL OF NEUROLOGY – TOP 15 ARTICLES 2018

      February 1, 2019

      Top 10 Articles

      Interview with Prof. Patrick Cras – UEMS Section of Neurology (SN)

      February 3, 2018

      Top 10 Articles

      Interview with Mr. Bertrand Daval and Mrs. Nathalie Paulus

      February 3, 2018

      Scientific Corner

      The Future of Brain Research: EU-Initiatives and Experts Together for a Shared European Brain Research Agenda

      March 1, 2021

      Scientific Corner

      New Scales & Scores on Sleep-wake disorders

      January 21, 2021

      Scientific Corner

      Registrar’s Reading List: Epilepsy Panel

      November 2, 2020

      Scientific Corner

      Registrar’s Reading List: Dementia

      September 22, 2020

  • Educational
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      March 1, 2021

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      Academic/Scientific

      New Scales & Scores on Dementia

      February 11, 2021

      E-Brain

      EBRA launches 3rd call for clusters

      May 1, 2020

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      February 28, 2020

      E-Brain

      ebrain to host the 2019 Neurology Formative Test Questions, from 15 April to 26 May

      April 1, 2019

      E-Brain

      ebrain update: Changes in the ebrain team

      November 1, 2018

      Grand Rounds

      eBrain: virtual case report from Belgium

      October 2, 2017

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      July 1, 2016

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      Ebrain granted Royal College of Physicians (UK) CPD/CME accreditation

      July 1, 2016

      Grand Rounds

      ebrain session of the month: neuromuscular junction

      February 1, 2016

      Continuing medical education

      CME online – June 2019 

      June 3, 2019

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      February 21, 2019

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      Continuing medical education

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      July 24, 2018

      Resident and Research Fellows

      EAN Spring School 2020 – Virtual – Webcasts

      November 20, 2020

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      November 13, 2020

      Resident and Research Fellows

      EAN VIRTUAL CONGRESS -Resident and Research Fellow Section General Assembly

      May 26, 2020

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      May 24, 2020

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      March 1, 2021

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      March 1, 2021

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      February 1, 2021

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      February 1, 2021

      Education corner

      First Virtual EAN Regional Teaching Course in Moscow, Russia

      March 1, 2021

      Education corner

      New Scales & Scores on Dementia

      February 11, 2021

      Education corner

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      Education corner

      EAN Spring School – Application Deadline is 5 February 2021

      December 21, 2020

  • Miscellanea
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      March 3, 2021

      General interest

      Brain Talks: Professor Günther Deuschl addresses burden of neurological diseases in Europe

      March 3, 2021

      Miscellanea

      Alzheimer Europe adds two new trials to its Clinical Trials Watch

      March 1, 2021

      Miscellanea

      EMA public stakeholders meeting on the approval, safety monitoring and impact of COVID-19 vaccines in the EU

      March 1, 2021

      Holiday Calendar

      EAN Calendar 2020 – Template For Printing

      December 12, 2019

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      24.12. The last day

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      Grant opportunities

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      November 1, 2019

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      October 29, 2019

      Grant opportunities

      The Clinical Fellowship application deadline is approaching

      October 1, 2019

      News from EAN member societies

      News from EMA: First oral treatment for spinal muscular atrophy (SMA) recommended for approval

      March 3, 2021

      News from EAN member societies

      EMA’s Webinar on ”COVID-19 vaccination – what you need to know as a health professional”

      February 5, 2021

      News from EAN member societies

      Personalized plans, blood biomarkers and early interventions: Think Brain Health conference highlights

      February 1, 2021

      News from EAN member societies

      New gene therapy to treat rare genetic disorder metachromatic leukodystrophy

      January 18, 2021

      EBC

      EBC launches statement on the impact of COVID-19 on brain health

      February 1, 2021

      EBC

      EBC launches new series of disease fact sheets!

      December 1, 2020

      EBC

      Present Your Business or Idea at the Brain Innovation Days Pitch Competition

      October 27, 2020

      EBC

      Save the date for the Brain Innovation Days launch!

      October 1, 2020

      EFNA

      EFNA launch eLearning Platform for neurology advocates

      February 1, 2021

      EFNA

      ‘Me and My Brain’ – Art Competition winners announced!

      February 1, 2021

      EFNA

      Survey on the impact of COVID-19 on neurology service delivery

      November 1, 2020

      EFNA

      EFNA Advocacy Awards 2021 – ‘Action Against Stigma’

      October 1, 2020

      News in general

      WFN Brain Health Awareness Public Webinar

      February 16, 2021

      News in general

      EBC launches statement on the impact of COVID-19 on brain health

      February 1, 2021

      News in general

      European Neuromuscular Centre (ENMC) – Mid-Career Mentoring Programme

      February 1, 2021

      News in general

      Alzheimer Europe launches new guide targeted at health and social care workers and a policy briefing on intercultural care and support

      January 1, 2021

      Topic of the Month/Week

      Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research

      March 13, 2018

      Topic of the Month/Week

      Dystonia Europe celebrates 25 years

      March 13, 2018

      Patients societies reports

      News from Alzheimer Europe

      March 2, 2020

      Patients societies reports

      News from the WHO

      January 9, 2020

      Patients societies reports

      News from EFIC and the European Pain Forum

      January 3, 2020

      Patients societies reports

      News from EFIC and the European Pain Forum

      January 2, 2020

      Surveys

      Driving with an intracranial tumor

      July 13, 2020

      Surveys

      SURVEY: Driving with an intracranial tumor

      June 25, 2020

      Surveys

      EAN SURVEY: Neurological Symptoms in COVID-19 Patients

      April 10, 2020

      Surveys

      EMA communication: ICH Good Clinical Practice Guidelines (ICH E6) – Open Comment Opportunity – Deadline: 1 November 2019

      October 7, 2019

      Forum

      Call for Applications: e-Learning Platform Editor-in-Chief

      August 4, 2020

      Forum

      Neurological News from Denmark VI – the land of the 2nd EAN congress 2016: Pain Research in Denmark from a neurological perspective

      April 1, 2016

      Forum

      Neurological News from Denmark V – the land of the 2nd EAN congress 2016: Clinical Dementia Research in Denmark

      March 1, 2016

      Forum

      Updated recommendations to minimise the risk of the rare brain infection PML with Tysabri – Comment to EMA recommendation

      March 1, 2016

      Uncategorized

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Saudi Arabia)

      January 12, 2021

      Uncategorized

      Effect of pre-exposure use of hydroxychloroquine on COVID-19 mortality: a population-based cohort study in patients with rheumatoid arthritis or systemic lupus erythematosus using the OpenSAFELY platform

      December 2, 2020

      Uncategorized

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (New Zealand)

      November 24, 2020

      Uncategorized

      Report from the annual Pain Forum meeting

      November 2, 2020

  • EAN
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eanpages

  • General interest
    • All COVID-19 Executive Page Country of the Month Paper of the Month EAN News EAN Congress news Interviews
      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Cape Verde)

      March 3, 2021

      General interest

      Fellow of EAN awarded 2021 Brain Prize

      March 3, 2021

      General interest

      Brain Talks: Professor Günther Deuschl addresses burden of neurological diseases in Europe

      March 3, 2021

      COVID-19

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      COVID-19

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Cape Verde)

      March 3, 2021

      COVID-19

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      COVID-19

      COVID-19 continuous-EEG case series: A Descriptive Study

      March 3, 2021

      COVID-19

      Acute ischemic stroke and COVID-19: An analysis of 27 676 Patients

      March 3, 2021

      Executive Page

      Executive page: From Website editor to Co-Chair Communication Committee

      February 1, 2021

      Executive Page

      Severe COVID-19-related encephalitis can respond to immunotherapy

      January 5, 2021

      Executive Page

      Executive Page: Happy New Year 2021 from the EAN, the Home of Neurology

      January 4, 2021

      Executive Page

      Executive Page: Recap of 2020 from Secretary-General

      December 1, 2020

      Country of the Month

      Country of the Month: Lithuania

      March 1, 2021

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      Country of the Month: Albania

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      Country of the Month

      Country of the Month: The Netherlands

      November 1, 2020

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      Country of the Month: Serbia

      October 1, 2020

      Paper of the Month

      COVID-19 Paper of the month: A non-inflammatory mRNA vaccine for treatment of experimental autoimmune encephalomyelitis

      March 1, 2021

      Paper of the Month

      Research Paper of the month: Safety and Efficacy of Omaveloxolone in Friedreich Ataxia (MOXIe Study)

      March 1, 2021

      Paper of the Month

      COVID-19 Paper of the month: Safety and Efficacy of the BNT162b2 mRNA COVID-19 Vaccine

      February 1, 2021

      Paper of the Month

      Research Paper of the month: Trial of dexamethasone for chronic subdural hematoma

      February 1, 2021

      EAN News

      First Virtual EAN Regional Teaching Course in Moscow, Russia

      March 1, 2021

      EAN News

      European Academy of Neurology endorses the ALBA declaration on Equity and Inclusion

      January 25, 2021

      EAN News

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      EAN News

      Welcome to new year by Editor-in-Chief

      January 1, 2021

      EAN Congress news

      Congress Registration is open

      December 15, 2020

      EAN Congress news

      Abstract Submission is open

      December 15, 2020

      EAN Congress news

      EAN announces Virtual Congress in 2021

      December 1, 2020

      EAN Congress news

      Investigator Award Winners 2020

      September 14, 2020

      Interviews

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Cape Verde)

      March 3, 2021

      Interviews

      Prof. Dafin Muresanu, Chair of the EAN Communication Committee interviews Prof. Raad Shakir, CBE

      March 1, 2021

      Interviews

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (South Africa)

      February 5, 2021

      Interviews

      COVID-19 around the World: Clinician interviews on experience and impact of the virus (Japan)

      February 1, 2021

  • Academic/Scientific
    • All Scientific committee reports Scientific panels reports Breaking news Neurology updates Eur J Neurol Top 10 Articles Scientific Corner
      General interest

      Brain Talks: Professor Günther Deuschl addresses burden of neurological diseases in Europe

      March 3, 2021

      COVID-19

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      COVID-19

      COVID-19 continuous-EEG case series: A Descriptive Study

      March 3, 2021

      COVID-19

      Acute ischemic stroke and COVID-19: An analysis of 27 676 Patients

      March 3, 2021

      Scientific committee reports

      Scientific Committee Snapshot: Didier Leys

      April 1, 2020

      Scientific committee reports

      Scientific Committee Snapshot: Rigmor Hojland

      February 26, 2020

      Scientific committee reports

      Scientific Committee Snapshot: Christian Enzinger

      December 1, 2019

      Scientific committee reports

      Scientific Committee Snapshot: Maurizio Leone

      November 1, 2019

      Scientific panels reports

      Coma and DOC Panel Update (May-June): news from the EAN Virtual Congress, personalized pain assessment, NIRS-EEG and machine learning to predict outcomes, prevalence of swallowing disorders and new multimodal predictive algorithms.

      August 11, 2020

      Scientific panels reports

      Statement of the EAN Sleep-Wake-Panel

      June 3, 2020

      Scientific panels reports

      Rare Neurological Diseases in the COVID-19 era: Suggestions for information to patients and caregivers

      May 13, 2020

      Scientific panels reports

      Scentific Panel of the Month: Higher Cortical Functions

      March 2, 2020

      Breaking news

      Serum and CSF alpha-synuclein levels do not change in COVID-19 patients with neurological symptoms

      March 3, 2021

      Breaking news

      COVID-19 continuous-EEG case series: A Descriptive Study

      March 3, 2021

      Breaking news

      Acute ischemic stroke and COVID-19: An analysis of 27 676 Patients

      March 3, 2021

      Breaking news

      Inflammatory cytokine patterns associated with neurological diseases in COVID-19

      March 3, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      February 18, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      February 18, 2021

      Neurology updates

      Neurology Update: Dementia and Cognitive Disorders

      February 18, 2021

      Neurology updates

      Neurology Update: Dementia and cognitive disorders

      February 18, 2021

      Eur J Neurol

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Eur J Neurol

      EAN consensus statement for management of patients with neurological diseases during the COVID‐19 pandemic

      October 22, 2020

      Eur J Neurol

      BREAKING NEWS: A systematic review of neurological manifestations of SARS‐CoV‐2 infection: the devil is hidden in the details

      June 30, 2020

      Eur J Neurol

      EUROPEAN JOURNAL OF NEUROLOGY: CONTRIBUTIONS FROM SPANISH AUTHORS

      November 4, 2019

      Top 10 Articles

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Top 10 Articles

      EUROPEAN JOURNAL OF NEUROLOGY – TOP 15 ARTICLES 2018

      February 1, 2019

      Top 10 Articles

      Interview with Prof. Patrick Cras – UEMS Section of Neurology (SN)

      February 3, 2018

      Top 10 Articles

      Interview with Mr. Bertrand Daval and Mrs. Nathalie Paulus

      February 3, 2018

      Scientific Corner

      The Future of Brain Research: EU-Initiatives and Experts Together for a Shared European Brain Research Agenda

      March 1, 2021

      Scientific Corner

      New Scales & Scores on Sleep-wake disorders

      January 21, 2021

      Scientific Corner

      Registrar’s Reading List: Epilepsy Panel

      November 2, 2020

      Scientific Corner

      Registrar’s Reading List: Dementia

      September 22, 2020

  • Educational
    • All E-Brain Grand Rounds Continuing medical education Resident and Research Fellows Fellowship reports Education corner
      Educational

      Clinical Fellowship Reports 2020

      March 1, 2021

      Educational

      First Virtual EAN Regional Teaching Course in Moscow, Russia

      March 1, 2021

      Educational

      Clinical Fellowship Reports 2019

      March 1, 2021

      Academic/Scientific

      New Scales & Scores on Dementia

      February 11, 2021

      E-Brain

      EBRA launches 3rd call for clusters

      May 1, 2020

      E-Brain

      News from ebrain

      February 28, 2020

      E-Brain

      ebrain to host the 2019 Neurology Formative Test Questions, from 15 April to 26 May

      April 1, 2019

      E-Brain

      ebrain update: Changes in the ebrain team

      November 1, 2018

      Grand Rounds

      eBrain: virtual case report from Belgium

      October 2, 2017

      Grand Rounds

      Free access to Ebrain for EAN members

      July 1, 2016

      Grand Rounds

      Ebrain granted Royal College of Physicians (UK) CPD/CME accreditation

      July 1, 2016

      Grand Rounds

      ebrain session of the month: neuromuscular junction

      February 1, 2016

      Continuing medical education

      CME online – June 2019 

      June 3, 2019

      Continuing medical education

      Continuing Medical Education

      February 21, 2019

      Continuing medical education

      CME online – October 2018

      October 1, 2018

      Continuing medical education

      CME online – July 2018

      July 24, 2018

      Resident and Research Fellows

      EAN Spring School 2020 – Virtual – Webcasts

      November 20, 2020

      Resident and Research Fellows

      EAN is proud to announce the 2020 Virtual Master Classes Christmas Special

      November 13, 2020

      Resident and Research Fellows

      EAN VIRTUAL CONGRESS -Resident and Research Fellow Section General Assembly

      May 26, 2020

      Resident and Research Fellows

      EAN Virtual Congress: Round table Special Session: Unleash your potential with EAN!

      May 24, 2020

      Fellowship reports

      Clinical Fellowship Reports 2020

      March 1, 2021

      Fellowship reports

      Clinical Fellowship Reports 2019

      March 1, 2021

      Fellowship reports

      Clinical Fellowship Reports III 2019

      February 1, 2021

      Fellowship reports

      Clinical Fellowship Reports II 2019

      February 1, 2021

      Education corner

      First Virtual EAN Regional Teaching Course in Moscow, Russia

      March 1, 2021

      Education corner

      New Scales & Scores on Dementia

      February 11, 2021

      Education corner

      The First EAN Virtual Master Classes 2020 – Report

      January 1, 2021

      Education corner

      EAN Spring School – Application Deadline is 5 February 2021

      December 21, 2020

  • Miscellanea
    • All Holiday Calendar Grant opportunities News from EAN member societies EBC EFNA News in general Topic of the Month/Week Patients societies reports Surveys Forum Uncategorized
      News from EAN member societies

      News from EMA: First oral treatment for spinal muscular atrophy (SMA) recommended for approval

      March 3, 2021

      General interest

      Brain Talks: Professor Günther Deuschl addresses burden of neurological diseases in Europe

      March 3, 2021

      Miscellanea

      Alzheimer Europe adds two new trials to its Clinical Trials Watch

      March 1, 2021

      Miscellanea

      EMA public stakeholders meeting on the approval, safety monitoring and impact of COVID-19 vaccines in the EU

      March 1, 2021

      Holiday Calendar

      EAN Calendar 2020 – Template For Printing

      December 12, 2019

      Holiday Calendar

      24.12. The last day

      December 24, 2018

      Holiday Calendar

      23.12. Last-minute gift idea

      December 23, 2018

      Holiday Calendar

      22.12. A chance to win…

      December 22, 2018

      Grant opportunities

      European Commission: Innovation and novelty in medical devices and in vitro diagnostic devices; towards common concepts of innovation-related risk assessments

      November 1, 2019

      Grant opportunities

      GBS|CIDP Foundation International 2020 Research Grant Opportunity

      October 29, 2019

      Grant opportunities

      The Clinical Fellowship application deadline is approaching

      October 1, 2019

      News from EAN member societies

      News from EMA: First oral treatment for spinal muscular atrophy (SMA) recommended for approval

      March 3, 2021

      News from EAN member societies

      EMA’s Webinar on ”COVID-19 vaccination – what you need to know as a health professional”

      February 5, 2021

      News from EAN member societies

      Personalized plans, blood biomarkers and early interventions: Think Brain Health conference highlights

      February 1, 2021

      News from EAN member societies

      New gene therapy to treat rare genetic disorder metachromatic leukodystrophy

      January 18, 2021

      EBC

      EBC launches statement on the impact of COVID-19 on brain health

      February 1, 2021

      EBC

      EBC launches new series of disease fact sheets!

      December 1, 2020

      EBC

      Present Your Business or Idea at the Brain Innovation Days Pitch Competition

      October 27, 2020

      EBC

      Save the date for the Brain Innovation Days launch!

      October 1, 2020

      EFNA

      EFNA launch eLearning Platform for neurology advocates

      February 1, 2021

      EFNA

      ‘Me and My Brain’ – Art Competition winners announced!

      February 1, 2021

      EFNA

      Survey on the impact of COVID-19 on neurology service delivery

      November 1, 2020

      EFNA

      EFNA Advocacy Awards 2021 – ‘Action Against Stigma’

      October 1, 2020

      News in general

      WFN Brain Health Awareness Public Webinar

      February 16, 2021

      News in general

      EBC launches statement on the impact of COVID-19 on brain health

      February 1, 2021

      News in general

      European Neuromuscular Centre (ENMC) – Mid-Career Mentoring Programme

      February 1, 2021

      News in general

      Alzheimer Europe launches new guide targeted at health and social care workers and a policy briefing on intercultural care and support

      January 1, 2021

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InterviewsTop Articles

Interview with Mary Reilly – President of the Peripheral Nerve society (PNS)

July 7, 2017

 

 

 

 

Peter Van den Bergh (PVdB): Peripheral neuropathies are common neurological disorders. In the annual EAN congresses, they are an important topic which the Scientific Panel Neuropathies strives to integrate in the scientific and in the educational Program. I would like to introduce the Peripheral Nerve Society (PNS) of which you are the president to the EANpages readership. Can you please explain what the PNS stands for and what its objectives and aims are to the readers of the EANpages?

Mary Reilly (MR): The Peripheral Nerve Society (PNS) is an international organisation of physicians and scientists working together to develop and provide the best treatments for people who have peripheral nerve diseases. The Society was formed in 1994 and was an amalgamation of two Societies – the Peripheral Neuropathy Association and the Peripheral Nerve Study Group. The Peripheral Nerve Society has grown and currently has more than 500 members from all over the world. A major activity of the PNS is its meeting, which used to happen every second year, but from 2017 it will be every year. This meeting provides state of the art talks and education in all peripheral neuropathies and novel therapy developments. The PNS is also committed to education and runs teaching courses, joint workshops and symposia in a variety of meetings including in collaboration with the EAN, but also the AAN, AANEM, ICNMD, and the WFN. Increasingly we are also running smaller workshops in individual countries. We have a keen commitment to encouraging the future involvement of younger members and in the last two years we have formed a junior PNS board which advises the PNS board of all of its activities and also organises the teaching course of the PNS which occurs the day before the main meeting. The PNS is the natural home for anybody who is interested in peripheral nerve diseases from basic science right through to treating patients.
The upcoming meeting for 2017 of the PNS will be in Sitges, Spain, from the 8-12th July 2017.

PVdB: Peripheral neuropathies represent a wide spectrum of disorders both acquired and hereditary. Can you give an insight in how the PNS is organised to cover the various aspects of the peripheral neuropathy field?

MR: Peripheral neuropathies represent a very wide spectrum of disorders and we have been very keen in the PNS to be comprehensive in covering peripheral neuropathy. The Core Meeting is a 3½ day meeting covering all neuropathies, but in view of the increasing exciting diagnostic and therapeutic developments of inflammatory and inherited neuropathies, there are now two consortia within the PNS: the Inflammatory Neuropathy Consortium (INC) and the Charcot-Marie-Tooth disease and related neuropathy consortium (CMTR) which will have dedicated sessions in the PNS 2017 meeting. Also for the first time in 2017 there will be an afternoon symposium dedicated to diabetes. Therefore, the PNS covers not only the whole spectrum of peripheral neuropathies but also appreciates how important basic science research is to the understanding of peripheral nerve diseases and always includes basic science talks in its plenary sessions. In our Education Committee we also have a sub-committee for basic science meetings so that we run symposia on peripheral nerve diseases in basic science meetings as well as in clinical meetings.

PVdB: The etiology and pathophysiology of peripheral nerve disorders are very diverse and the perception still prevails that often no cure or treatment exists. What is your view on this and on the future perspectives for treatment?

MR: Historically many peripheral nerve diseases were deemed be untreatable, but I am very pleased that this is now gradually changing. In the last two decades there has been an increasingly number of successful treatments available for the inflammatory neuropathies including Guillan-Barré syndrome (GBS), chronic inflammatory demyelinating polyradiculopathy (CIDP) and the vasculitic neuropathies. As such, diagnosis and management of these conditions has become a very important part of the peripheral neuropathy specialist work. New treatments for amyloidosis, lymphoma and POEM’s disease in the last 5-6 years have also made the diagnosis of these conditions extremely important to be made by the peripheral nerve specialist. An exciting current area is the development of therapies for inherited neuropathies. The trials of gene silencing therapies for TTR related Familial Amyloid Polyneuropathy (FAP) are due to be presented this year and there are many small molecules and gene editing therapies in development for other inherited neuropathies. This has meant that the area of peripheral neuropathies has been a rapidly evolving area with emphasis on early diagnosis to allow for early therapy. I see this as developing in the future so that there are increasingly personalised treatments for both the inflammatory and the inherited neuropathies.

PVdB: The PNS is a world-wide international organisation which holds its congresses in North America and in Europe. We have been discussing the possibilities of collaboration with the EAN as you well know. Several members of the PNS are also members of the EAN Scientific Neuropathy Panel and we already collaborate in putting together the scientific and educational programme since many years. How do you see the perspectives for even closer collaboration between the PNS and the EAN?

MR: I see the collaboration between the PNS and the EAN as an exciting opportunity to develop further. We have had very successful previous collaborations between the PNS and EFNS which have resulted in development of guidelines for a number of diseases including CIDP which are extremely useful and widely used. As you know we are in the early stages of developing the first joint PNS /EAN guidelines which would be for GBS, and the PNS is very excited about this.
Again, following previous collaborations particularly between the PNS and the EFNS, we are also collaborating with the EAN in developing scientific and educational programmes, and are very keen to continue to do this.
As you say, many of our European members are members of both the PNS and the EAN, and there is a will to have a closer collaboration. I would see that in the future this collaboration could evolve to encompass the development of registries, databases, collaboration in national history studies, clinical trials and joint funding of fellowships. We are very committed to improve the health of patients in developing countries with peripheral neuropathy through education and training of neurologists, and I would see a potential opportunity for the PNS and EAN to collaborate and deliver this mission.

PVdB: A new initiative are the European Reference Networks (ERNs) for Rare Disorders, which aim to facilitate and coordinate care of patients with rare disorders across Europe. Euro-NMD is the ERN for neuromuscular disorders, which has been created earlier this year. Since peripheral neuropathies are an integral part of the network and you are coordinating the peripheral neuropathies specialist group, what are the implications for the PNS according to you?

MR: Development of the Euro-NMD as our European reference network for rare diseases has been a very exciting development and I am pleased to be co-ordinating the peripheral neuropathy specialist group within this. A very laudable main aim of the ERN is to allow all patients in Europe availing of the same opportunities for diagnosis and treatment of their rare disease wherever they live. Through this we not only need to develop guidelines of what is the best care for peripheral neuropathies, but also know the detail of the expertise which is available in individual countries. We then need to develop models of how patients access this, mainly in a virtual environment, but in a system which has an excellent governance structure. I hope very much that the Euro-NMD is successful in this mission, and if it is then I would see this as a system which could be expanded worldwide to improve the diagnosis and treatment of peripheral neuropathies and other rare diseases. It would seem to me that the Euro-NMD, EAN and PNS could work together and make this reality.

PVdB: Soon the European Neuromuscular Centre (ENMC), which organises many workshops on a yearly basis, will celebrate its 25th birthday. This year alone already 2 workshops have dealt with peripheral neuropathies. Can you tell the EANpages readers how you see the ENMC as an instrument for advancing research and treatment of peripheral neuropathies?

MR: The European Neuromuscular Centre (ENMC) is a fantastic organisation for advancing research for the treatment of peripheral neuropathy. Over the last 25 years there has been multiple workshops which have revolutionised the treatment of diseases from developing guidelines to agreeing details of actual treatments in the inflammatory and inherited neuropathies. In my own area of research in inherited neuropathies the ENMC was instrumental over the last two decades in funding and running focused workshops for us all to bring very well phenotyped families together to help combine these families for linkage studies and eventual identification of genes. More recently the ENMC has allowed us to develop agreed outcome measures for clinical trials in the inherited neuropathies, but also in many other neuropathies and to agree standards of care. I think that the ENMC has been one of the great European successes over the last 25 years and it has always had an open door policy of having non-Europeans involved who bring in expertise internationally. Going forward I would like to see the ENMC enlarge and include countries outside Europe more formally to help both fund it and allow greater international participation in these workshops. The impact of these workshops over the last 25 years has been enormous.

PVdB: How do you see the future of the PNS with regard to research and development of diagnostic tools and treatment of hereditary and acquired neuropathies?

MR: I see the role of the PNS as being pivotal with regards to the development of research and the development of diagnostic tools and treatment in all kinds of neuropathies in the future. There are many different types of societies and very many different types of meetings that we all go to. These vary from excellent meetings covering a wide spectrum of neurological diseases, like the EAN, to very focused workshops with 20 to 30 people looking at one aspect of one disease like the ENMC. I have personally noticed in the last decade that the tendency for people is to attend sub-speciality meetings and I appreciate how we all benefit hugely from these. One of the disadvantages of very small sub-speciality meetings is that one may lose the breadth of ideas from other diseases in your area. I think that the PNS has a unique place since it covers the whole of peripheral neuropathies from basic science through to treating all types of neuropathies. At our meetings we aim at having very generalised plenary sessions complimented by several sub-speciality meetings and hence hopefully educating everyone and helping both research and development of the neuropathies.

Professor Reilly I thank you for this very interesting interview and wish you and PNS all the best for the future.

 

Interview by Peter Van den Bergh, Co-chair of the EAN Scientific Neuropathy Panel

 

 

Interview with Mary Reilly – President of the Peripheral Nerve society (PNS) was last modified: November 12th, 2018 by Editor
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Charcot-Marie-Toothperipheral nervous systemrare diseasesPNSInflammatory NeuropathyGuillan-Barré syndromeFamilial Amyloid Polyneuropathy
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