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      Executive Page Dear EAN members, dear friends, It is my pleasure to give you an update on behalf of the EAN Scientific Committee following a busy year since my appointment as chair. It has been a privilege to be so deeply involved in the scientific activities of the EAN and to work closely with an amazing community of people who are so dedicated to the advancement of neurology. One of the strongest threads within that community is the EAN’s group of Scientific Panels, which are often referred to as the organisation’s ‘scientific backbone’. The panels have a hand in everything the EAN does from a scientific point of view, including coordinating clinical research, disseminating good practice, assisting in planning the EAN annual congress, supporting the EAN’s educational efforts, and producing guidelines that assist neurologists in daily practice. All of this work requires a considerable amount of oversight, and this is why each panel is run by its own Management Group, elected by the panel members. Being a part of one of these Management Groups (PDF) is an opportunity to play a direct part in determining the direction of scientific progress within Europe, and I am excited to say that the call for applications to stand for election will be announced in September. All panel members and EAN individual members are eligible to apply to be candidates, with the vote being held among the existing panel members in autumn. I would like to urge every neurologist with a passion for the scientific future of their special area of interest to consider standing for election to the relevant Management Group and to look out for the call for applications later this month. I can tell you from personal experience that fulfilling a role such as this within the structure of the EAN is a fascinating and extremely rewarding experience. The chance to take on such a unique leadership position should not be missed! The most satisfying aspect of being involved in the EAN’s organisational structure is surely seeing all the hard work and planning come to fruition when a small idea evolves into a newly launched project. One such example is the 1st EAN Science School, taking place in Salzburg next March. The idea of the Science School is to offer early career neurologists with an interest in translational research a new avenue for learning about basic pathomechanisms of neurological disorders. Application for this very first edition, on ‘Pathophysiology of disorders of the nervous system’, closed last week and we have been delighted with the level of interest. It was a pleasure to be part of the task force in charge of planning this new project and I look forward to seeing it officially transferred to the hands of the Scientific Committee after a successful event and evaluation in spring. Of our ongoing activities, one of the most significant is the EAN Neuro-covid Registry, which aims to collate epidemiological data on neurological manifestations in patients with COVID-19 infection reported by neurologists in outpatient services, emergency rooms, and hospital departments. We currently have 1,542 patients entered in the database, from 35 centres across 23 countries. So far, 29 patients have been followed for 12 months and 387 have completed the 6-months follow up. This is a decent start, but I would like to strongly encourage EAN members and their institutions to get involved and contribute cases to what will become an invaluable resource for neurologists and clinicians to improve care for Covid-19 patients. Finally, I would like share a word on a forthcoming collaboration between EAN and the Human Brain Project in December, that I think will interest a lot of EAN members. The EAN-EBRAINS joint workshop on ‘The future of medical data sharing in clinical neurosciences’ will be a three-day virtual event that aims to discuss issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. The whole workshop is completely free of charge and registration is open until 25 November, so please check out the details and sign up! I wish you all a healthy and pleasant autumn and I look forward to updating you again. Best wishes Thomas Berger Chair of the EAN Scientific Committee

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      Research Paper of the Month: Effects of oral anticoagulation in people with atrial fibrillation after spontaneous intracranial haemorrhage (COCROACH)

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      Executive Page Dear EAN members, dear friends, It is my pleasure to give you an update on behalf of the EAN Scientific Committee following a busy year since my appointment as chair. It has been a privilege to be so deeply involved in the scientific activities of the EAN and to work closely with an amazing community of people who are so dedicated to the advancement of neurology. One of the strongest threads within that community is the EAN’s group of Scientific Panels, which are often referred to as the organisation’s ‘scientific backbone’. The panels have a hand in everything the EAN does from a scientific point of view, including coordinating clinical research, disseminating good practice, assisting in planning the EAN annual congress, supporting the EAN’s educational efforts, and producing guidelines that assist neurologists in daily practice. All of this work requires a considerable amount of oversight, and this is why each panel is run by its own Management Group, elected by the panel members. Being a part of one of these Management Groups (PDF) is an opportunity to play a direct part in determining the direction of scientific progress within Europe, and I am excited to say that the call for applications to stand for election will be announced in September. All panel members and EAN individual members are eligible to apply to be candidates, with the vote being held among the existing panel members in autumn. I would like to urge every neurologist with a passion for the scientific future of their special area of interest to consider standing for election to the relevant Management Group and to look out for the call for applications later this month. I can tell you from personal experience that fulfilling a role such as this within the structure of the EAN is a fascinating and extremely rewarding experience. The chance to take on such a unique leadership position should not be missed! The most satisfying aspect of being involved in the EAN’s organisational structure is surely seeing all the hard work and planning come to fruition when a small idea evolves into a newly launched project. One such example is the 1st EAN Science School, taking place in Salzburg next March. The idea of the Science School is to offer early career neurologists with an interest in translational research a new avenue for learning about basic pathomechanisms of neurological disorders. Application for this very first edition, on ‘Pathophysiology of disorders of the nervous system’, closed last week and we have been delighted with the level of interest. It was a pleasure to be part of the task force in charge of planning this new project and I look forward to seeing it officially transferred to the hands of the Scientific Committee after a successful event and evaluation in spring. Of our ongoing activities, one of the most significant is the EAN Neuro-covid Registry, which aims to collate epidemiological data on neurological manifestations in patients with COVID-19 infection reported by neurologists in outpatient services, emergency rooms, and hospital departments. We currently have 1,542 patients entered in the database, from 35 centres across 23 countries. So far, 29 patients have been followed for 12 months and 387 have completed the 6-months follow up. This is a decent start, but I would like to strongly encourage EAN members and their institutions to get involved and contribute cases to what will become an invaluable resource for neurologists and clinicians to improve care for Covid-19 patients. Finally, I would like share a word on a forthcoming collaboration between EAN and the Human Brain Project in December, that I think will interest a lot of EAN members. The EAN-EBRAINS joint workshop on ‘The future of medical data sharing in clinical neurosciences’ will be a three-day virtual event that aims to discuss issues and challenges associated with data sharing in Europe, from ethics to data safety and privacy, including those specific to data federation, such as the development and validation of federated algorithms. The whole workshop is completely free of charge and registration is open until 25 November, so please check out the details and sign up! I wish you all a healthy and pleasant autumn and I look forward to updating you again. Best wishes Thomas Berger Chair of the EAN Scientific Committee

      Executive Page: Management Group elections are coming – run for office and help shape our future!

      September 1, 2023

      Executive Page

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      Research Paper of the Month: Effects of oral anticoagulation in people with atrial fibrillation after spontaneous intracranial haemorrhage (COCROACH)

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Other News

World Brain Day (Epilepsy) – Wednesday, July 22, 2015

July 6, 2015

by Mohammad Wasay & Wolfgang Grisold

UnbenanntThe first World Brain Day was started by World Federation of Neurology in 2014 with the slogan “Our brains-Our future”. This global campaign was designed to promote awareness about brain and neurological diseases and to promote brain health. A large number of national societies organized activities and media events. Hundreds of newspaper items and media posts were created and shared via electronic, print and social media.

UnbenanntFor 2015, the WFN has identified “Epilepsy” as theme for brain day campaign. In January 2015, World Health Organization (WHO) approved a board resolution and a call for coordinated efforts to address health, social and public knowledge implications of epilepsy. This is a landmark event for creating improved awareness and care across the world especially resource limited countries.

Hence, World Brain Day activities will be organised in collaboration with the International League Against Epilepsy (ILAE) and International Bureau of Epilepsy (IBE). WFN is working with WHO to organise a joint press conference on 22 July, 2015.

Epilepsy is one of the most common preventable and treatable neurological disorders in world. There are more than 50 Million people living with epilepsy. It could be deadly if not properly treated. Untreated epilepsy is associated with 3-6 times increased risk of premature death. Most of patients (almost 80%) live in low and low-middle income countries and 75% of those affected do not have access to treatment. This is most alarming as more than 70% patients with epilepsy can lead a normal life if properly treated. Major reason for not having access to treatment (treatment gap) is lack of awareness, societal misconceptions (known as stigma), availability and affordability of anti-epileptic medications. It is a low priority area for most of the developing countries governments.

Epilepsy societies especially ILAE, IBE and national neurology and epilepsy organisations have been working for decades. There aim is to create public awareness and physicians education. WHO resolution and WFN World Brain Day campaign will provide a boost and momentum to this ongoing mission. We are extremely optimistic that a joint advocacy campaign by WHO, WFN, ILAE and IBE will create innumerable activities at national and local levels leading to increase governmental awareness and action regarding care and treatment of epilepsy.

This World Brain Day campaign on epilepsy would like to emphasise on prevention. The most important causes of epilepsy include peri-natal brain injury, infections, traumatic brain injury, and stroke. All of these conditions are preventable.

The target of this campaign is the public. We need to create clear messages in local languages and promote them via electronic, social media, billboards, banner, events etc. The next important area of intervention is healthcare authorities and policy makers. Our campaign should result in policy and priority shift at national or local level. We have to plan targeted activities to facilitate this outcome. Another important area of intervention is awareness and training of general practitioners, nurses and paramedical staff. Involvement of media is a must. Celebrities, scientists and sports personalities with epilepsy could be a part of this advocacy campaign.

Mohammad Wasay MD, FRCP, FAAN is Chair of the Public Awareness and Advocacy Committee of the WFN and Co-Chair of the World Brain Day Organizing Committee. He works at Aga Khan University, Karachi, Pakistan. 

Wolfgang Grisold, MD is Secretary General at WFN and Co-Chair of the World Brain Day Organizing Committee.

World Brain Day (Epilepsy) – Wednesday, July 22, 2015 was last modified: July 29th, 2016 by Editor
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The Regional Teaching Day in Tel Aviv, Israel is followed by the Israel Neurological Association Annual Conference on 19-20 December 2023. Please find more information here: Regional Teaching Day Tel…
Jan
31
Wed
all-day Application deadline! EAN Spring...
Application deadline! EAN Spring...
Jan 31 all-day
Please find more information here: Spring School – ean.orgShare this...FacebookTwitterLinkedin
Feb
26
Mon
all-day EPNS Training Course on Acute Ne...
EPNS Training Course on Acute Ne...
Feb 26 – Feb 27 all-day
EPNS Training Course on Acute Neurology
European Paediatric Neurology Society (EPNS) – Training Course on Acute Neurology 26-27 February 2024 EPNS courses are aimed at trainees/residents plus qualified paediatric neurologists who want to refresh their knowledge.…
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