EARLS is a non–profit independent alliance of national Restless Legs Syndrome (RLS - also known as Willis Ekbom Disease) European patient organizations. Launched in November 2009, EARLS had six founding members: Belgium, Finland, Spain, Sweden, The Netherlands and the United Kingdom. France, Norway and Austria have now also joined.
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by Anna Sauerbier September is World Alzheimer’s Month
https://www.worldalzmonth.org/ Dementia: why don’t we have any treatments yet?
https://www.insight.mrc.ac.uk/2017/09/21/dementia-dont-treatments-yet/ Standardisation of Alzheimer’s biomarkers’ testing
https://ec.europa.eu/jrc/en/science-update/standardisation-alzheimers-biomarkers-testing 7th European symposium on the “Societal Impact of Pain” (SIP 2017)
https://www.sip-platform.eu/files/editor/media/sip2017/Proceedings/SIP%202017%20Proceedings_v1.0.pdf… Continue Reading -
The European Headache Alliance is a non-profit, patient umbrella group which was launched in 2006. Since then, the Alliance has grown to represent 25 migraine, cluster and other headache disorder patient groups from across the continent. EHA was created to speak on behalf of and to advocate for the rights and needs of the 80 million people in Europe living with a headache disorder.
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By Anna Sauerbier Can a diabetes drug be repurposed to treat Parkinson’s too? http://parkinsonslife.eu/can-diabetes-drug-repurposed-treat-parkinsons/ The ParkinsonNet programme http://parkinsonslife.eu/parkinsonnet-starbucks-formula-new-approach-parkinsons-treatment-bas-bloem/ Scientists discover how the brain’s hypothalamus controls ageing – and manage to slow it down https://theconversation.com/scientists-discover-how-the-brains-hypothalamus-controls-ageing-and-manage-to-slow-it-down-81510… Continue Reading
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1st Summer School on Neuromodulation for Movement Disorders – a unique experience
August 4, 2017by Antonella Macerollo The first Summer School on Neuromodulation for Movement Disorders was sponsored by the European Section of Movement Disorders (MDS) and took place in Grenoble, France, on July 6-8th 2017. This three-day course encompassed several key lectures from… Continue Reading -
by Anna Sauerbier Neuroscience-based Nomenclature
https://www.ecnp.eu/research-innovation/nomenclature.aspx?ec_as=B7D865F484714A188FBBD8563A5F7CF8 New Alzheimer Europe publication highlights inequalities in access to dementia care and treatment across Europe
http://cordis.europa.eu/news/rcn/141444_en.html?&WT_mc_id=email-Notification Alzheimer Europe launches European Dementia Monitor 2017 at the European Parliament
http://alzheimer-europe.org/News/Alzheimer-Europe/Tuesday-27-June-2017-AE-launches-European-Dementia-Monitor-2017-at-the-European-Parliament Atomic… Continue Reading -
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Annual International Congress of Parkinson’s Disease and Movement Disorders in Vancouver – a fantastic experience
July 7, 2017by Mubasher Qamar and Anna Sauerbier The annual international congress of Parkinson’s disease and Movement Disorders Society (IPMDS) took place in, Vancouver, Canada, on June 4-8th 2017. This four-day congress encompassed several key lectures from basic neuroscience to new clinical… Continue Reading -
The Brain Prize is now open to researchers around the world The Brain Prize was launched in 2011 and was awarded for the 7th time this year to Peter Dayan, Wolfram Schultz and Ray Dolan for their work on… Continue Reading
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EBC and Brain Awareness Week 2017 European Parliament – Strasbourg on 16th March 2017.
June 1, 2017The event entitled “Expanding Brain Research in Europe: A societal Need?” prompted excellent debate and discussion among the speakers and audience throughout the meeting. Key speakers were: Monica Di Luca – Vice President of EBC, and former President of FEN),… Continue Reading -
Pain Alliance Europe (PAE) was established in November 2011 by a handful of enthusiastic patients organizations from across Europe that wanted to have pain recognised as a disease in its own right.
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News from EAN member societiesOther News
Reading recommendations- news from other societies
June 1, 2017Major research funders and international NGOs to implement WHO standards on reporting clinical trial results -
Two events were organised by EBC for the 2017 Brain Awareness Week (BAW) 2017:
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Patient Organisation Profile
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by Anna Sauerbier I love my brain logo – please download and use
http://www.braincouncil.eu/activities/news/download-the-i-love-my-brain-logo/ World Health Day 2017 – Depression: the biggest barrier to workplace well-being
http://www.mhe-sme.org/fileadmin/Position_papers/Depression-_the_biggest_barrier_to_workplace_well-being.pdf Alzheimer Europe: The importance of awareness in dementia
http://researchfeatures.com/2017/02/28/alzheimer-europe/… Continue Reading -
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James Parkinson – An Essay on the Shaking Palsy 1817: A Celebration of 200 Years of Progress
April 1, 2017From Anna Sauerbier and Miguel Rosa-Grilo
On the 10th and 11th of March 2017 more than 250 leading health professionals came together in London to celebrate the 200 years of the publication of “An Essay on the Shaking Palsy”… Continue Reading