On the occasion of the ninth European Conference on Rare Diseases & Orphan Products (ECRD) held in Vienna on 10th-12th May 2018, Prof. Marc Dooms, main author of the Declaration on Good Off-Label Use Practices (GOLUP), presented the 5 criteria for using medicines off-label that are laid down in the declaration. Many participants showed an interest in the declaration as well as various initiatives organized within the framework of the GOLUP-campaign.
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Other News
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WFN website: www.wfneurology.org Adress for the WBD: wbd2018@wfneurology.org.
Clean air for brain health
Mohammad Wasay MD, FRCP, FAAN (Aga Khan University, Karachi, Pakistan)
Wolfgang Grisold MD (Secretary General, WFN, Vienna, Austria) A link between environment and health has long been… Continue Reading -
Last week EFNA attended the 4th European Academy of Neurology (EAN) Congress in Lisbon, along with more than 6700 neurologists! Once again, EFNA took this opportunity to bring together our members for our annual General Assembly. On Day 1 we… Continue Reading
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by Anna Sauerbier
Digital medicine and treatment development for brain disorders
AZ, Lilly pull plug on Alzheimer’s disease trials
France builds first Alzheimer’s ‘village’ in pioneering experiment
Horizon Europe budget not big… Continue Reading -
Prof. G. Deuschl, President of the EAN and Prof. W. Wick President of EANO are pleased to announce that: EAN has joined with EANO to promote optimal management of neuro-oncological care in neurology in Europe.
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Dear Colleague,
We seek your help in identifying candidates for the € 1 million prize, The Brain Prize, which is awarded by the Lundbeck Foundation.
The Brain Prize recognizes highly original and influential advances in research on the nervous system,… Continue Reading -
InterviewsOther News
Interview with Mogens Bundgaard-Nielsen, Former Chairman of the Board of Trustees of the Lundbeck Foundation
June 1, 2018David B. Vodušek (DBV): Mr Bundgaard-Nielsen, you have been director of the Lundbeck Foundation. Can you explain to our readers the facts about this foundation and its relations to Lundbeck, the well known pharmaceutical company? Mogens Bundgaard-Nielsen (MBN): The Lundbeck Foundation was established in 1954 by Grete Lundbeck. She was the widow after Hans Lundbeck, the founder of the company H. Lundbeck who died some 10 years earlier. She eventually -
by Anna Sauerbier
EPD introduces Massive Open Online Course (MOOC) on “Introduction to Cognitive Behavioural Therapy”
Mental health policy: What progress are we making?
How can we create sustainable healthcare systems?
MasterMind:… Continue Reading -
The year’s BRAIN prize was awarded to Professors Bart de Strooper (Leuven),Christian Haass (Munich), Michael Goedert (Cambridge) and John Hardy (London) for their groundbreaking research on the genetic and molecular basis of Alzheimer’s disease, with far-reaching implications for the… Continue Reading -
Other News
News from the cooperation between EAN and the European Federation of Autonomic Societies (EFAS)
May 7, 2018
Patients with cardiovascular dysautonomia often develop neurogenic supine hypertension, that is hypertension while lying, even in the presence of severe blood pressure falls upon standing, i.e. orthostatic hypotension. Neurogenic supine hypertension has been linked to chronic end-organ damage, as well… Continue Reading -
2017 was a remarkable year for EBC, thanks to the development of an increasing number of activities and new initiatives. In particular, the publication of EBC’s policy white paper on the “Value of Treatment for Brain Disorders in Europe”… Continue Reading
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by Anna Sauerbier
1) Depression study pinpoints genes that may trigger the condition
https://www.eurekalert.org/pub_releases/2018-04/uoe-dsp041318.php
2) Practice makes perfect: The human brain can reprogram itself to control prosthetic limbs
https://sciencebusiness.net/news/practice-makes-perfect-human-brain-can-reprogram-itself-control-prosthetic-limbs
… Continue Reading -
Founded/Established in and Short synopsis of aims and objectives
The European ME Alliance (EMEA) was founded in 2008 and is committed to increase understanding of Myalgic
Encephalomyelitis (ME or ME/CFS) and improve quality of life experienced by people with… Continue Reading -
by Anna Sauerbier
1) EFNA launch ‘Survey of Young Europeans with Neurological Conditions’
http://www.braincouncil.eu/activities/news/efna-launch-survey-of-young-europeans-with-neurological-conditions/
2) Europe’s pharma companies join with non-profit group in push to measure outcomes of medical treatments
https://sciencebusiness.net/healthy-measures/news/europes-pharma-companies-join-non-profit-group-push-measure-outcomes-medical… Continue Reading -
Other NewsTop ArticlesTopic of the Month/Week
Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research
March 13, 2018This Brain Awareness Week EFNA are launching a Survey of Young Europeans with Neurological Conditions.
