On 9th and 10th October a course on guidelines for rare diseases took place in Rome, Italy. It was organised by the RARE-Bestpractices, a platform for sharing best practices for the management of rare diseases.

Dr Aleksandra Herrera-Sokołowska joined ebrain earlier in the year as Clinical lead and RRFS representative. Dr Herrera-Sokołowska qualified in 2016 (Polish specialty exam and the European Board of Neurology). As the ebrain representative for European young neurologists, she is familiar… Continue Reading

The next meeting of the MEP Interest Group on Brain, Mind and Pain will take place at the European Parliament in Brussels on November 21, from 8.00h to 10.00h. The event will be hosted by MEP Marian Harkin. With the… Continue Reading

by Lucia Cernicka   Guidelines International Network or G-I-N is a community with a mission to lead, strengthen and support collaboration in guideline production. To enhance its networking role, the G-I-N organises conferences on a regular basis, once a year,… Continue Reading

8th Winter Course on Movement Disorders 54th Turkish National Neurology Congress

In Europe, there are approximately 740 million people, most of whom experience an episode of severe pain at some point in their life. For approximately 20 percent, that pain is chronic – episodic, persistent, or variable. In other words, today… Continue Reading

  Vienna, 12-13 October 2018: First recommendation meeting of the EAN ALS guideline panel. ALS is a disease with a very high unmet medical need. There are only limited options for disease-modifying pharmacotherapy. The cornerstone of the management remains multidisciplinary… Continue Reading

Prof. Dafin Muresanu (DF):Can you briefly illustrate the structure and mission of the World Muscle Society (WMS) to the readers of the EANpages? Peter van den Bergh (PvdB): The WMS was founded in London, UK, on 4 June 1995 by 15 founding members. The initiative came from Professor Victor Dubowitz who selected these founding members based on the principle that they constituted a high-level multidisciplinary team from all over the w

In light of EAN works towards a broader base of cooperation also with sub-specialty societies, an MoU was signed with the WMS and Prof. Thomas Voit President of the society.

EANPages: How do you see the role of the Programme Committee within the overall work of EAN? Paul Boon (PB): The programme committee is the forum of exchange, discussion and decision on major aspects of the yearly EAN congress. The EAN congress is a scientific and educational meeting that is the flagship event of EAN. The PC decides on the main building blocks of congress. It is the PC that selects the proposals for symposia, sessions and

      by Anna Sauerbier         Dr Gamian-Europe calls for concrete action to empower those affected by mental ill health https://www.efna.net/gamian-europe-calls-for-concrete-action-to-empower-those-affected-by-mental-ill-health/   German Government commits to developing national dementia strategy
https://www.alzheimer-europe.org/News/Policy-watch/Thursday-20-September-2018-German-Government-commits-to-developing-national-dementia-strategy   World Mental Health Day… Continue Reading

On September 25th , EBC held its latest event in the European Parliament, this time building on the Value of Treatment‘s work on Alzheimer’s and The Socioeconomic impact of Alzheimer’s in Europe. This event was an opportunity to further present… Continue Reading

EANpages: How do you see the role of the Scientific Committee within the overall work of the EAN? Antonio Federico (AF): The Scientific Committee (SC) is one of the most important EAN committees since its role is to coordinate the activities of the 31 Scientific Panels (SP) and has thus a close relationship with the EAN members. Its role is the promotion of scientific activities and of collaborations within the different European countries.

Dear Colleagues, I hope that you are all looking forward to the 2019 EAN congress in Oslo, and that you are planning abstracts to submit! On October the 16th I attended an inspection visit of the congress venue, along with Franz Fazekas our president, Erik Tauboll chair of the local organizing committee, members of the EAN office team and representatives from Industry partners that are sponsoring our congress.

For November 2018, we have selected: Oh KW, Noh MY, Kwon NS, et al. Repeated intrathecal stem cells for amyotrophic lateral sclerosis. Ann Neurol 2018;84:361-373. Stem cell research is a hot topic in motor neuron disease/amyotrophic lateral sclerosis (MND/ALS) both for clinicians and patients. Whilst recognized as an important area of promise for developing future therapeutics in neurodegenerative disease, it has been much hyped in the media, and dissecting the scientific research on the subject from the many unproven approaches advertised to patients by commercially motivated companies can be challenging.