EFNA

EFNA member association Dystonia Europe was among the winners of the Brain, Mind, and Pain Patient-Centred Innovation Grant, announced on Wednesday in Brussels.

Last week EFNA attended the 4th European Academy of Neurology (EAN) Congress in Lisbon, along with more than 6700 neurologists! Once again, EFNA took this opportunity to bring together our members for our annual General Assembly. On Day 1 we… Continue Reading

EAMDA is the European Alliance of Neuromuscular Disorders Associations and works to support and improve the quality of everyday life of people with neuromuscular disorders (NMDs).

A “National Action Plan 2025” was launched recently by the Danish government, with broad support from most political parties, and a funding of € 63 mill. for 2017-2019.

The International Brain Tumour Alliance (IBTA) is a global network founded in 2005 as a worldwide community for brain tumour patient organisations, medical professionals  and others in the field of neuro oncology. We bring together international experience and expertise with the aim of enhancing the well-being and quality of life of brain tumour patients and their families and promoting the need for more brain tumour research.

November 22, 2017 – European Parliament, Brussels Access to quality healthcare is a basic citizen’s right – yet it is still not a reality for all of us. Large health inequalities persist in the EU and many patients do not… Continue Reading

EARLS is a non–profit independent alliance of national Restless Legs Syndrome (RLS - also known as Willis Ekbom Disease) European patient organizations. Launched in November 2009, EARLS had six founding members: Belgium, Finland, Spain, Sweden, The Netherlands and the United Kingdom. France, Norway and Austria have now also joined.

The European Headache Alliance is a non-profit, patient umbrella group which was launched in 2006. Since then, the Alliance has grown to represent 25 migraine, cluster and other headache disorder patient groups from across the continent. EHA was created to speak on behalf of and to advocate for the rights and needs of the 80 million people in Europe living with a headache disorder.

2016 was a busy year for the European Federation of Neurological Associations [EFNA], with the launch of some of the organisation's biggest-ever independent projects.

Over the past number of months, member organisations of the European Federation of Neurological Associations [EFNA] have been profiled in EANpages. Flick back through previous editions to meet those groups advocating at the European level in the fields of Dystonia,… Continue Reading

Pain Alliance Europe (PAE) was established in November 2011 by a handful of enthusiastic patients organizations from across Europe that wanted to have pain recognised as a disease in its own right.

Patient Organisation Profile

Ann Little (AL): Alistair, congratulations on winning an EFNA Neurology Advocacy Award in the Patient Advocate category. Can you tell us when, how and why you became involved in patient advocacy?  Alistair Newton (AN): Thank you.  It is an honour to have been chosen for this award, especially as I was part of the 'core' team of the EFNA Board during its formation and through its first decade.  In turn, I congratulate the current EFNA leadership on its successes and excellent development since then.