The European Brain Council (EBC) recently provided feedback to the European Commission on the Horizon Europe proposals that were published in June 2018.
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EFNAOther News
Patient Advocacy in the Digital World – Registration now open for EFNA’s young advocates workshop
September 1, 2018WHEN: November 19 – 21, 2018
WHERE: Brussels, Begium
WHO: Anyone between the ages of 18 and 35, living in Europe, who is affected by a neurological disorder
The workshop will take place through the English language. A good level… Continue Reading -
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23rd World Congress of the International Association of Parkinson’s Disease and Related Disorders (IAPRD)
September 1, 2018The XXIII World Congress of the International Association of Parkinson’s Disease and Related Disorders (IAPRD) was held from August 19th to 22th, 2018, in Lyon, France, at the Lyon Convention Centre, a beautiful location designed by the famous Italian… Continue Reading
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by Anna Sauerbier European Brain Council provides feedback on the Horizon Europe proposals http://www.braincouncil.eu/activities/news/ebc-provides-feedback-on-the-horizon-europe-proposals/ The FDA designates device aiming to mitigate symptoms of agitation and depression associated with AD as… Continue Reading
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BioMed Alliance – Moving forward from drug-centered to patient-centered clinical research
September 1, 2018The BioMed Alliance through the work of its Task Force “Clinical Trials” published a statement on the need for Europe to implement patient-centered clinical research.Precision medicine approaches the treatment of disease via an individual’s genes, environment, and… Continue Reading
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by Anna Sauerbier EFNA’s Survey of Young Europeans with Neurological Conditions https://www.efna.net/wp-content/uploads/2018/07/EFNAYoungPeopleSurvey.pdf Two years after Brexit vote, a cloud still hangs over research https://sciencebusiness.net/news/two-years-after-brexit-vote-cloud-still-hangs-over-research Societal Impact of Pain… Continue Reading
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Biomed Alliance: Prof. Axel Pries, President of the Biomed Alliance, meets with MEP Christian Ehler, rapporteur to the EP for the EC Horizon Europe Framework. In view of the ongoing political discussions around the European Commission’s proposal for funding… Continue Reading
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Thanks to a memorandum of understanding between the European academy of neurology (EAN) and the African academy of neurology (AFAN), for the second year, AFAN has had an exhibition stand at the EAN congress; this year in Lisbon, Portugal.… Continue Reading
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Last week marked the launch of the EBC statement “Counting down to zero: Towards a future with underfunded health research?”, which calls on the European Commission, the European Parliament and the Council of the European Union to increase the budget of the 9th Framework Programme of Research & Innovation, or “Horizon Europe”, to at least €120 billion.
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Prof. F. Fazekas, President of the EAN and Prof. W. Struhal President of EFAS are pleased to announce that: EAN has joined with EFAS to promote Autonomic Nervous System (ANS) disorders in Europe and advance optimal care and management for… Continue Reading
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EFNAOther News
News from EFNA: MyBrainNet by Dystonia Europe among winners of the Brain, Mind and Pain Grant
July 1, 2018EFNA member association Dystonia Europe was among the winners of the Brain, Mind, and Pain Patient-Centred Innovation Grant, announced on Wednesday in Brussels. -
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GAMIAN Europe – Mental health, patient empowerment and self-management of care and treatment
July 1, 2018GAMIAN-Europe, a patient-driven pan-European organization, represents the interests of persons affected by mental illness and advocates their right www.gamian.eu GAMIAN Europe: European Parliament Interest Group on Mental Health, Well-being and Brain Disorders European Parliament, Brussels, Belgium, 16 May 2018… Continue Reading
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On the occasion of the ninth European Conference on Rare Diseases & Orphan Products (ECRD) held in Vienna on 10th-12th May 2018, Prof. Marc Dooms, main author of the Declaration on Good Off-Label Use Practices (GOLUP), presented the 5 criteria for using medicines off-label that are laid down in the declaration. Many participants showed an interest in the declaration as well as various initiatives organized within the framework of the GOLUP-campaign.
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WFN website: www.wfneurology.org Adress for the WBD: wbd2018@wfneurology.org.
Clean air for brain health Mohammad Wasay MD, FRCP, FAAN (Aga Khan University, Karachi, Pakistan)
Wolfgang Grisold MD (Secretary General, WFN, Vienna, Austria) A link between environment and health has long been… Continue Reading -
Last week EFNA attended the 4th European Academy of Neurology (EAN) Congress in Lisbon, along with more than 6700 neurologists! Once again, EFNA took this opportunity to bring together our members for our annual General Assembly. On Day 1 we… Continue Reading