The European Reference Networks for Rare Neurological Diseases (ERN-RND) and for Rare Neuromuscular Diseases (ERN EURO-NMD) organise joint webinars throughout the year in collaboration with EAN.
ERN-RND is pleased to announce that they scheduled additional webinars with a new focus on neurorehabilitation. The first one will take place on 18 June.
You can find the webinar schedule here and sign up to the ERN-RND newsletter here to receive monthly updates.
Webinar Schedule
| Date | Topic | Speaker | Institution | ERN |
|---|---|---|---|---|
| 18 June, 3-4pm CET | Goal setting and outcome measures of interventions in pediatric rehabilitation | Annemieke Buizer | Amsterdam Research Institute for Movement Sciences, Netherlands | ERN-RND |
| 25 June | Pediatric muscle imaging | Robert-Yves Carlier | University Hospital Raymond-Poincaré APHP, France | EURO-NMD |
| 30 June, 3-4pm CET | RCT on intrathecal baclofen for dystonia | Laura Bonouvrié | Amsterdam University Medical Center, Netherlands | ERN-RND |
| 9 July, 3-4pm CET | Environmental modifiers in Hereditary Spastic Paraplegia | Pauline Lallemant-Dudek | APHP, Brain and Spine Institute (ICM) Paris, France | ERN-RND |
| 14 July, 3-4pm CET | Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes | Jorik Nonnekes & Martin Srp | Radboudumc, Netherlands & Charles University, Czech Republic | ERN-RND |
| 23 July | Introduction to MR Neurography | Olivier Scheidegger | Bern University Hospital/University of Bern, Switzerland | EURO-NMD |
| 20 August | Painful neuropathies – from diagnosis to treatment | Janneke Hoeijmakers | Maastricht University Medical Center, the Netherlands | EURO-NMD |
| 8 September, 3-4pm CET | Semantic variant of primary progressive aphasia | Robert Rusina & Zsolt Cséfalvay | Charles University Thomayer Hospital & Comenius University, Czech Republic | ERN-RND |
| 10 September, 3-4pm CET | How to assess and manage spastic gait in rare diseases? | Gál Ota | General University Hospital in Prague, Czech Republic | ERN-RND |
| 15 September, 3-4pm CET | A challenge in neurogenetics: Huntington disease in kids | Ferdinando Squitieri | Fondazione IRCCS Casa Sollievo Sofferenza & CSS-Mendel Institute, Italy | ERN-RND |
| 17 September | The basics of genetic approaches for NMDs – using DMD as a paradigm | Annemieke Aartsma-Rus | Leiden University Medical Center, Netherlands | EURO-NMD |
| 29 September, 3-4pm CET | How can we develop and implement evidence based rehabilitation in rare disorders? | Hortensia Gimeno | NIHR & Guy’s and St Thomas’ NHS Foundation Trust, UK | ERN-RND |
| 6 October, 3-4pm CET | Treatment of spasticity in HSP and leukodystrophies | Annemieke Buizer & Laura Bonouvrié | Amsterdam Research Institute for Movement Sciences & Amsterdam University Medical Center, Netherlands | ERN-RND |
| 13 October, 3-4pm CET | Diagnostic algorithm for childhood onset chorea | Juan Dario Ortigoza-Escobar | Sant Joan de Déu Hospital, Barcelona, Spain | ERN-RND |
| 20 October, 3-4pm CET | Clinical practice recommendations for physical therapy for Huntington’s disease | Bernhard Landwehrmeyer | University Ulm, Germany | ERN-RND |
| 22 October | Personalized care for patients with ALS: ALS Home monitoring & coaching | Anita Beelen | University Medical Center Utrecht, Netherlands | EURO-NMD |
| 3 November, 3-4pm CET | Non-invasive stimulation for ataxias | Bart van de Warrenburg | Radboud University Medical Centre, Nijmegen, Netherlands | ERN-RND |
| 10 November, 3-4pm CET | Rehabilitation in ataxia: current evidence and practice | Ludger Schöls | University of Tübingen, Germany & ERN-RND coordinator | ERN-RND |
| 19 November | Congenital Myasthenia Syndrome – an update | Sithara Ramdas | Oxford University Hospitals NHS Foundation Trust John Radcliffe Hospital | EURO-NMD |
| 24 November, 3-4pm CET | Development of Sara-home: a novel assessment tool for patients with ataxia | Gessica Vasco & Susanna Summa | Ospedale Pediatrico Bambino Gesù, Rome, Italy | ERN-RND |
| 1 December, 3-4pm CET | Functional movement disorders: a diagnostic guide | Christos Ganos | Charité, University Medicine, Berlin, Germany | ERN-RND |
