As part of Rare Disease Day 2026, European Brain Council is organising their annual Rare Brain Disease Ecosystem event. Taking place on 2๐ฐ ๐๐ฒ๐ฏ๐ฟ๐๐ฎ๐ฟ๐ ๐ฎ๐ฌ๐ฎ๐ฒ ๐ถ๐ป ๐๐ฟ๐๐๐๐ฒ๐น๐, this day will convene experts from research, clinical care, patient advocacy and industry to:
–ย ย Review key regulatory developments shaping rare brain disease policy in Europe
–ย ย Strategies to advance the Rare Brain Disease Ecosystem & develop a comprehensive Knowledge Hub
–ย ย Explore improved care pathways for conditions including Myasthenia Gravis, Neurofibromatosis Type 1 and Childhood Dementia
We are proud that Prof. Kailash Bhatia, EAN President-Elect, is speaking at the European Brain Councilโs โAdvancing the Rare Brain Disease Ecosystem and Building a Knowledge Hubโ session โ a panel discussion focused on collaboration across research, care, policy, and digital innovation to improve outcomes for rare brain diseases.
This event is an opportunity to shape a collaborative roadmap that enhances knowledge sharing and builds capacity within the Rare Brain Disease community!
For more information and to register, please click HERE
