The EAN established an office in Brussels located within the University Foundation a long time established institution founded in 1920 to promote scientific activity at Belgian universities.
Over time, this scope was enlarged and the Foundation now hosts an important number of academic societies such as EAN, FENS - Federation of European Neuroscience Societies, EURORDIS – European Organisation for Rare Diseases, EPA – European Psychiatric association etc.
It is a pleasure to share with the European neurological community the outcome of the first teaching course for rare neurological diseases. The course took place in Cluj-Napoca, Romania, from 7th to 9th September 2017.
Many political decisions within the health system are critical depending on the number of patients affected by a particular disease group and hence which discipline of medicine is responsible for the care of these patients. This applies for budgets for health care, number of beds for a particular disease group, overall budget for a discipline within a hospital, budgets for out- or inpatients care, but also percentage of research money which goes into particular fields of medical research. Also, the general public counts on these measures because mortality, morbidity and costs of disease are important to determine the importance of a disease group and usually, the higher the numbers the more important is the disease.
How do neurological patients and their families experience stigma? That was the subject of a European Parliament meeting on 14 October, 2015
“Neurological, chronic pain and mental health conditions are not widely recognised or understood by the general population. Negative… Continue Reading
Gian Luigi Lenzi (GLL): Can you briefly describe the Alliance for Biomedical Research in Europe (Biomed Alliance).
Gustave Moonen (GM): The Alliance for biomedical research in Europe (Biomed Alliance) is a non-profit organisation founded in 2010 by four societies namely the European Cancer Organisation (ECCO), the European Respiratory Society (ERS), the European Society of Cardiology (ESC) and the European Association for the Study of Diabetes (EASD).
Experts at the Congress of the European Neurological Society in Barcelona emphasised that neurological diseases not only cause considerable suffering and undermine people’s quality of life but also incur huge costs. A total of about 220 million people in Europe… Continue Reading