We hear from the European Federation of Neurological Associations – EFNA on the special sessions being organised at the upcoming 5th EAN Congress taking place in Oslo, Norway (June 29 – July2, 2019).
This includes a joint EFNA-EAN Special Session on the Scientific Programme entitled: ‘A plan to strengthen brain health in Europe’. At this session, EAN will present the latest figures on neurology from the Global Burden of Disease Study. You will also hear why national brain plans must be put in place, see a successful example from Norway and understand why we must advocate together for neurology!
There will also be two sessions organised to coincide with the Congress on Dystonia and ME.
A Plan to Strengthen Brain Health in Europe – EAN-EFNA Special Session @ EAN2019
Norges Varemesse – Norway Convention & Exhibition Centre,
Messeveien 8, 2004 Lillestrøm.
Monday, July 1 – 08:00 – 09:30 – Jan Mayen 2
This symposium will focus on the increasing burden of brain diseases and the aim of EAN – and its patient-partners at the European Federation of Neurological Associations – to advocate for the development of European brain health plans to address this worrying trend.
The first national brain plan in Europe was launched in Norway in December 2017. This will be presented as a best practice template by State Secretary, Anne Grethe Erlandsen of the Norwegian Ministry of Health and Care Services and Anne Hege Aamodt, President of the Norwegian Neurological Association.
Eminent speakers such as Prof. Vladimir Hachinski (former President of the World Federation of Neurology) and Prof. Monica di Luca (President of the European Brain Council) will present how such national brain plans and/or disease-specific strategies could be used as a tool to push neurology up the political agenda and to ensure optimal outcomes for health care systems and their patients.
The session will be chaired by Joke Jaarsma, EFNA President and Prof. Hanne F. Harbo, Past President of the Norwegian Brain Council – with time for discussion on how the examples presented could be advanced and implemented elsewhere.
Come along to hear how you can join us to advocate for an increased focus on addressing the burden of neurological disorders in your country!
Dystonia Today – special session at the EAN Congress 2019!
Coinciding with the European Academy of Neurology’s annual congress, Dystonia Europe – together with the European Federation of Neurological Associations [EFNA] – will organise a special session entitled:
Dystonia Today
When: Saturday, June 29th, 2019 from 9.00 am – 10.30 am.
Where: Arena Thon Hotel, Room Romerike – Nesgata 1, 2004 Lillestrøm, Norway
Recommended Audience: Health Professionals, Students/Residents/Trainees, Non-physician Health Professionals, Patients, industry representatives
Speakers and presentations will include:
Maja Relja: Dystonia: under-diagnosed condition
Kailash P.Bhatia: Clinical evaluation of dystonia
Marie Vidailhet: Therapy of dystonia
What will I learn?
Dystonia is a neurological disorder in which sustained and/or repetitive muscle contractions result in twisting and repetitive movements and/or abnormal posture. Dystonic movements are typically patterned, twisting and may be tremulous and painful. Dystonia is difficult to recognize due to its large phenomenological complexity. Thus, the use of dystonia specialist is essential for better recognition and management of dystonia. Although an under-diagnosed condition, dystonia syndromes (DS) represent the third most common disorder in movement disorder centers. We have shown lack of specific training in dystonia by general neurologist (GNs) general practitioners (GP) as well as other allied health professionals in the study performed by European network for the study of DS (A Valadas et all. J Eur Neurol 2015;0:1). Although treatable condition DS has a great impact on patients social life, functional and working capacity and Quality of Life (QoL). Recognizing dystonia is important for patient treatment and QoL.Come along to hear how we can better recognize, evaluate and treat Dystonia Today!
With an opportunity to ask questions of the experts in this field.
How do I sign up?
If you are interested in attending this event, please sign-up by completing the online form available here: https://goo.gl/AAE5T4
Places are limited so please register before June 13th, 2019.Note: You do not need to be registered for the Congress to attend this session as special badges will be provided to external attendees
Other information
All presentations will be delivered in English.
Tea/coffee and snacks will be served during registration from 8.30am outside the meeting room.
Listening to the Myalgic Encephalomyelitis (ME) patients’ voice – special session at the EAN Congress 2019!
The Norwegian ME Association – in partnership with the the European Federation of Neurological Associations – (EFNA) will organise a Public Awareness Day on Myalgic Encephalomyelitis, a debilitating neurological illness classified by the WHO under Diseases of the nervous system. This event will coincide with the European Academy of Neurology Annual Congress in Oslo.Listening to the Myalgic Encephalomyelitis (ME) patients’ voice
When: Saturday, June 29th, 2019 from 11.30 am – 1 pm.
Where: Arena Thon Hotel, room Romerike – Nesgata 1, 2004 Lillestrøm, Norway
Recommended Audience: This event is open to people living with ME, their family and friends, carers, health professionals or anyone interested in learning more about this debilitating disease.
Speakers and presentations will include:
– Professor Kristian Sommerfelt
– Professor Lauri Soini
– Helena Huhmar
– Trude Schei and Professor Arild Angelsen (The Norwegian ME Association)
THE LATEST RESEARCH IN ME:
To be presented by a researcher from the European ME Research Group (EMERG), a collaborative working group that increases biomedical research into Myalgic Encephalomyelitis (ME) in order to find cause(s), treatment(s) and understanding about the disease. EMERG is a concept formed by EMEA to provide a powerful combination of campaigning, raising of awareness, building new research and accumulation of data based on collaboration and sharing of experiences and knowledge, which allows rapid progress in the building up a strategy of high-quality research into ME.
THE RESULTS OF THE SURVEY OF THE ISOLATED PATIENTS:
Reports about the (very) severely affected ME-patients in Norway will be presented by the Norwegian ME Association, an organisation with around 5000 personal members with headquarters in Oslo and sub-associations in all Norwegian regions. They are a member of the European ME Alliance (EMEA), a grouping of European national organisations who are involved in supporting patients suffering from ME/CFS.LISTENING TO THE PATIENTS’ VOICE:
The European ME Clinicians Council, is a newly formed network of clinicians in Europe who can support each other and work together, aggregating the knowledge of experienced clinicians on clinical sub topics related to ME. They will share this knowledge about their experience in treating ME patients and how their work could lead to possible guidelines and providing patients, caregivers, advocates, clinicians and researchers the most up to date information is a critical outcome.
Other information
Attending the event is free of charge, and registration will start at 11 am at the Arena Thon Hotel.
Tea/coffee will be available on arrival.
All presentations will be in Norwegian/Swedish.
How do I sign up?
If you are interested in attending this event, send an email to Ellen V. Piro, – e.v.piro@me.com – with your NAME, PHONE NUMBER and EMAIL ADDRESS.
Places are limited so please register before June 13, 2019.
