The two European Reference Networks (ERNs) for Rare Neurological Diseases and Rare Neuromuscular Diseases (ERN-RND and ERN-EuroNMD) are launching a new joint educational program in collaboration with the European Academy of Neurology.
The goal is to share knowledge on rare neurological, movement and neuromuscular disorders and fill the gap in the educational offer in these fields. Our target audience are clinical specialists (neurologists, pediatric neurologists, geneticists), neurology trainees and other paramedical staff involved in patient care.
The webinars will treat different aspects of the disease groups covered in our networks such as clinical features, disease diagnosis and management, use of scales and flowcharts, and possible therapeutic interventions. Topics relevant for adult and pediatric cases will have equal share in our curriculum.
|28 January 2020
|Introduction to Leukodystrophies (with paediatric focus)||Nicole Wolf||Amsterdam University Medical Center, Netherlands||ERN-RND|
|4 February 2020
|Clinical evaluation of Dystonia||Kailash Bhatia||UCL Queen Square Institute of Neurology, London, UK||ERN-RND|
|18 February 2020
|Mitochondrial disorder with chorea||Martin Paucar||Karolinska Institute, Stockholm, Sweden||ERN-RND|
|20 February 2020||Mitochondrial donation||Robert McFarland||Welcome Center Mitochondrial Research, Newcastle University, UK||EURO-NMD|
|3 March 2020
|Ultrasound diagnostics for cervical Dystonia||Tobias Baümer||University of Lübeck, Institute of Neurogenetics, Germany||ERN-RND|
|14 April 2020
|Recognizing atypical parkinsonism||Wassilios Meissner||University Hospital Bordeaux, Institute of Neurodegenerative Disorders||ERN-RND|
|23 April 2020||Exercise & NMD||Nicole Voet||Klimmendaal – polikliniek, Netherlands||EURO-NMD|
|17 September 2020||The basics of genetic approaches for NMDs – using DMD as a paradigm||Annemieke Aartsma-Rus||Leiden University Medical Center, Netherlands||EURO-NMD|
|22 October 2020||Personalized care for patients with ALS: ALS Home monitoring & coaching||Anita Beelen||University Medical Center Utrecht, Netherlands||EURO-NMD|
|19 November 2020||Congenital Myasthenia Syndrome – an update||Sithara Ramdas||Oxford University Hospitals NHS Foundation Trust John Radcliffe Hospital||EURO-NMD|